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Cerebral Brain Atrophy: Anyone else out there?
Stroke & Cerebrovascular Diseases | Last Active: Aug 9 6:53am | Replies (272)Comment receiving replies
My son just turned 30 and was diagnosed with Cerebral brain atrophy. We see a neurologist tomorrow to explain this. I am terrified and dont know what to expect
Replies to "My son just turned 30 and was diagnosed with Cerebral brain atrophy. We see a neurologist..."
Hello @ace123
I was noticing that your son had an appointment this week. I hope the appointment provided you with some answers to your questions about your son's condition.
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My husband has been diagnosed with Cerebral Brain Atrophy. He was diagnosed at Mayo Clinic. He was given 3 to 4 years to live. At that time he was walking with no problems. It effects the balance and speech, and swallowing . He is now in his 4th year. He is wheelchair bound and has more trouble with swallowing. The doctor at Mayo said he would probably die of
Aspiration pneumonia as he has trouble swallowing.
I am so sorry about your son. My husband is 79 and at least this did not happen while he had a job and child in college. We are very grateful for that!
Please keep me informed. We have only found one other person who has this and she is in South Africa. I wrote to Colleen why there weren't more with this diagnosis and she said that it's very rare.
Noreen (wife of Howard James)