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Cerebral Brain Atrophy: Anyone else out there?

Stroke & Cerebrovascular Diseases | Last Active: Aug 9 6:53am | Replies (272)
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@karendam

Hi. My friend’s son, Kevin - age 42, is going through this now. He’s been to All the nyc hospitals. They now recommend the Mayo Clinic to determine why his cerebellum is shrinking. He’s in dire shape and it’s been hell on everyone that cares about Kevin. I’m not sure if you’re still on here. It’s taken so long to get to this point. He’s been through so many tests and doesn’t want to go to Mayo ...but he’s also not thinking properly. It’s a bad situation. I’m sorry you’re going through this.

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Replies to "Hi. My friend’s son, Kevin - age 42, is going through this now. He’s been to..."
Teresa, Volunteer Mentor | @hopeful33250 | Sep 11, 2018

Hello @karendam and welcome to Mayo Connect.

I am so sorry to hear about Kevin's difficulties with the shrinkage of his cerebellum. It is understandable that you are all concerned about him. He is fortunate to have so many caring people in his life!

I hope that he is able to allow others to help him with a decision to go to Mayo and get a second opinion.

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oldkarl | @oldkarl | Sep 11, 2018

@karendam Mine is not shrinking, but filling up with dead protein Fibrils. I have hereditary Gelsolin Amyloidosis. Look my story with tests, timeline, etc.: https://bit.Ly/1w7j4j8 under Amyloidosis. The safest file is a PDF file, but otf is also there.

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