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howardjames avatar

Cerebellum Atrophy

Stroke & Cerebrovascular Diseases | Last Active: Aug 17 8:26am | Replies (279)

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Welcome back to Connect, @menville. Things have been updated since you were here last. I hope you like the new look and feel.
I'm so glad you returned to offer your first hand experience with cerebellar atrophy or degeneration. I'm sure that @pec2884 @howardjames and @lisapraska would very much appreciate connecting with you.

I'd like to hear more about how you were diagnosed. Was it a long journey before you got the correct diagnosis? I can imagine that cerebellar degeneration wasn't the first thing that was suspected given that you were only 30 at the time.

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Replies to "Welcome back to Connect, @menville. Things have been updated since you were here last. I hope..."

I sent you along email; I guess you didn't receive it.
Any way, I waa diagnoset some 13 years ago. I have seen 5 Neurolgists, one a few months ago, most of them were,unanbleor unwilling to help. one, years ago was kind and patient.
There is such a specialty called a Neurolgical PT; she was most helpful.
By the way, they are doing research on Cerebellum Atrophy in France.