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← Return to Neuropathy: My Journey
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I've had PN for twenty years, shortly after a spinal fusion. Degenerative disk disease, severe arthritis, and heart issues. I'm also rated 100% (p&t) disabled by the Veterans Administration, although I have never been treated for 'PN' by the V.A., only private Doctors, and have been a patient with the same local medical clinic for over twenty years! After a recent case of bronchitis, I was prescribed 'Azithromiacian', for five days, and then 'Levofolxcian'. Two days after taking the 'Levofloxcian' severe back and leg pain symptoms started. I finished the two-a-day doses, for a total of five days on that medication, and stopped taking it about a week ago. I was then prescribed a muscle relaxer and pain-killer Presnidone, for ten days. It is not helping! I'm scheduled for an MRI tomorrow. I think I may need a lawyer. None of the protocol meds have worked for PN. The pain when trying to walk is so bad I need a walker and feel like my lower body from my back down to my feet won't support my upper body weight, and I'm recovering from a total shoulder replacement in December 2024. This new pain is above and beyond what I've been living with for PN pain for twenty years. Any suggestions? I did read the drug insert package before taking the 'Levofloxocian', and called the PA who prescribed it. He said, "You won't be on it long enough for any side-effects"! When my PCP returned, he told me he would have prescribed the same medications. Who do you believe, and now what do I do?
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To be truthful I have over 50 different drug allergies including Lyrica and neurotin. Anything that a doctor prescribes me I have to break down each inert ingredient. Including what’s in the capsule. My drug allergy has gotten so bad last time I quit breathing and turned purple. My husband yelled at the doctor he didn’t know it had sulfate. Yes, it was in the computer. Morphine sulfate duh it’s in the name how stupid. I am allergic to all sulfate, sulfites and sulfonamides. Put me in the hospital for two weeks because it also triggered my asthma and ended up with pneumonia.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5820202/#:~:text=The%20involvement%20of%20MMP%2D13,treatment%20option%20for%20diabetic%20neuropathy.When reading the insert for levothyroxine it is up front under neurological side effects and tells you to immediately to stop the medication. Common side effects include nausea, diarrhea, and trouble sleeping.[5] Serious side effects may include tendon rupture, tendon inflammation, seizures, psychosis, and potentially permanent peripheral nerve damage. Peripheral Nerve damage = Neuropathy dangerous drug if you already have nerve problems.
I have been screwed over so many times by doctors I don’t trust them. You should have demanded a different prescription. A PA does not know the side effects of a drug unless you have her look it up. The best thing is contact your pharmacist. They know the side effects just off of my past experience. The PA gets out their phones and google it. Your only option would be go after the PA. The attorney would ask you since you were having problems why did you keep taking it? They will try to put the responsibility back onto you. I went through a workman’s comp case and dealt with junk how they kept trying to put it off on me. As far is what they give you for neuropathy. Mine is autoimmune they are looking at IVIG therapy. I was on it as a child and it worked wonders for me. 2. Read up on alpha lipoic Acid by IV it’s been shown to do wonders according to research. Other than that the doctors tell you there’s nothing to do for it. Just things to mellow out the pain. I have also got it in my back and ribs darn does it hurt. There are a ton of scams of people wanting to sell you things that don’t work. There is one I am currently looking into. Being an RN never worked as one (I didn’t like the gossip) I am currently nitpicking one offer I heard on the internet.
It has over five different things in it. I am having to relisten to the information and write down the rest of it and research it. I also have a friend that has a degree in chemistry and I am going to ask her to research it also and see what she thinks. There’s a lot on alpha lipoic acid but this has lions mane and they talked so fast I didn’t catch the rest. They also talk about mmp-13. Interesting. Skip the word diabetic. Just focus on the rest.