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Anyone been on a clinical trial of Immunotherapy and Niraparib?

Posted by tammykl @tammykl, Nov 25, 2022

Has anyone been on a clinical trial of Immunotherapy and Niraparib, if so , for how long and what is your experience, ( positive or negative)
Thank you

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sourdough | @sourdough | Apr 2 8:14am
In reply to @waltsocal "Good luck with your clinical trial. 🙏🏻🙏🏻 For the rest of us, can you enlighten us..." + (show)
@waltsocal

Good luck with your clinical trial. 🙏🏻🙏🏻

For the rest of us, can you enlighten us on how you found and got into the clinical trial? And who is the trial with?

I’m very curious, because I’m just at that stage now. Most of the research I have done so far has not been very helpful. It seems very difficult to actually find one and get into it.

Thank you, Walter

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Hi Walter, it was my oncologist that referred me. And I actually was given multiple choices. Take care, good luck.

REPLY
sourdough | @sourdough | Apr 2 8:16am
In reply to @tammykl "I've been on it sense October. Every 3 weeks. I was wondering if anyone else was..." + (show)
@tammykl

I've been on it sense October. Every 3 weeks. I was wondering if anyone else was on it or knew anything about it.

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Yes, i am. Since February. And just recently I started having debilitating fatigue that pops up now and then. Otherwise no real side effects of note.

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sourdough | @sourdough | Apr 2 8:23am
In reply to @colleenyoung "Welcome, @sourdough. I second @waltsocal's questions. How did you find the clinical trial? Did your oncologist..." + (show)
@colleenyoung

Welcome, @sourdough. I second @waltsocal's questions. How did you find the clinical trial? Did your oncologist recommend it? How are you doing?

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Yes, my oncologist referred me to multiple clinical trials and this is the one we settled on first. I’m doing well, still dealing with intestinal issues, but then I was dealing with them on herceptin as well. Lately I’ve had some bouts of extreme fatigue, which has been hard to adjust to. But I’ll definitely discuss this with my team. For those that are having difficulty finding or being referred to a trial, I would advocate for your health and maybe find another oncologist/ facility to care for you.

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