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MGUS Symptoms: What symptoms did you experience?
Blood Cancers & Disorders | Last Active: May 15 3:30pm | Replies (72)Comment receiving replies
@kaurashima
Welcome to Connect. Although we share a blood disorder diagnosis with MGUS, we are all so different in how it presents as symptoms. And those of us with comorbidities…well that just complicates things further.
Colleen kindly provided several members who likely have great wisdom to share. In addition, I’d encourage you to organize your thoughts into questions to ask your hematologist/oncologist. You need not wait for two months, try to schedule a phone call. Worst case scenario, you can give your question to the nurse who will ask your physician and then get back to you with answers. You may need to repeat this with other specialists. Regardless, you will get some of your questions answered.
Have you had luck talking to your doctors about your concerns in the past?
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Thank you, Patty. Up until now, I have had good luck in getting answers to my concerns from Rheumatology. Coincidently, after MGUS diagnosis, I felt as if he was shrugging his shoulders and not paying too much attention to my concerns. I was wondering if it was because he did not know much about MGUS. I came to know this week that he is leaving the practice and now I know why I felt what I felt. It's time to look for another rheumatologist. Meanwhile, I have met Hematologist only once and I did not get my concerns addressed. I plan to do what you mentioned and see if I get answers.