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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)
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@maree56

I'm maree from australia I have Obstructive HCM. Been on Camzyos for 3 months get tired easly still having echocardiograms next week to see if anything has changed and monitor progress.
How is everyone else going ?

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Replies to "I'm maree from australia I have Obstructive HCM. Been on Camzyos for 3 months get tired..."
Debra, Volunteer Mentor | @karukgirl | Apr 3 9:35am

Hello @maree56, welcome to Mayo Connect!
I'm glad you found this site...and all the way from Australia too. Have you had time to poke around on here? There is a lot of information shared by other members that you may find interesting and helpful.
Every person is so unique and no two are alike, therefore each can have much different reactions to Camzyos, or any med really. You mention you have been on Camzyos for three months for HOCM and you still tire easily, did you have that same feeling before Camzyos?
I bet you are excited/anxious to learn the results of your upcoming echo, will you come back and share your progress?

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