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Liver transplant - Let's support each other

Transplants | Last Active: May 16 6:52pm | Replies (1572)

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@itsme623

What do you mean that pre-op and post-op was more than you expected?

Also, I have wondered, what is it like to "get the call"?

I'm not on the list yet, but hope to be soon.

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Replies to "What do you mean that pre-op and post-op was more than you expected? Also, I have..."

@itsme623,
My experience is that I was relieved to be placed on the liver waiting list. The wait however, was long and I grew sicker as my liver continued to fail. Side effects slowed me down and my kidneys suddenly failed, so I needed dialysis, was listed for a kidney. and continued to wait for the Call. During this time, my husband and I stayed at the Gift of Life House in Rochester, so we had support and companionship from strangers who becamwe like family to us. One morning, as my husband and I were preparing to go to the lobby to get on the shuttle to take me to th dialysis center at Mayo, the phone rang. I will always remember that the time, 6:42 AM, when I heard my transplant surgeon greet me with a cheerful, "Good Morning, Rosemary. How are you this morning?" (fine, I lied because by this time I felt awful all of the time) Then she said something like, "We have organs for you and want to know if you want to come in for surgery today." I feel so silly now, but I replied, " Yes, but first, I had to go to my dialysis treatment that was scheduled". She calmly said to come on to the hospital where the nurses would be waiting for me, and that they would take care of the dialysis as an inpatient. I was so excited that I couldn't think and nearly forgot to grab my prepared bag. We rode the shuttle to the hospital ( 7 blocks away) and I was admitted to the hospital. The nurses took care of everything and made me feel safe and special. And my husband was able to be with me for most of the time.

Are you scheduled for your liver transplant evaluation? Any questions about the process?