He is aware of the timeline. Doctor at Mayo Clinic was very up front with us. He is just getting inpatient with his life and wishes it would be over with. I cried about it when we were at Mayo but now have accepted it. It's just hard to watch him struggling to talk and walk when he was always such a busy man.
Are you the person in South Africa? Where were you diagnosed? Noreen

Dear Liz,
I haven't heard from you in a long time!!! Just a note to tell you that we are now living in Homer, Alaska. We are in our rainy season and it's cloudy and overcast almost every day. It is depressing but we have bought a special light that Alaskans sit under to give sunlight and stop any depression which can happen. We will only get 4 hours of sunshine during the month of December. This will be our first winter here. We have sold our home in Michigan and will be living here full time. At least our daughter and family are only two hours away from us. She has 3 children and we enjoy going to their music recitals. I envy you living in S. Africa which is warm.
How are you doing? Have you progressed in the cerebral atrophy? My husband is still walking with a walker but sometimes he will get dizzy and just fall backwards. I do have trouble understanding him but he is patient and will repeat what he says. He still can bathe himself and we have a walk-in shower that we have a stool in. I also use the stool as I have a bad back that gives me pain. It's the pits getting old!!! It is not for sissies.
I would love to write to you and send you a postcard from Alaska. I don't know if you can post your address! But you could leave it at my email address.
Thinking of you,
Noreen ( wife of HowardJames)

HI Noreen,I have been a bit quiet of late. I think I have joined too many sites and am not keeping up with all of them. I do admire your move. Very brave but the compensation of having family near must give you joy. I don't think I could survive with all the rain and only 4 hours of sunshine in December. My duvet is very snug in our winter and I love a cuddle but your extremes would be too much.

It is a mystery how this cerebral atrophy has such different symptoms in different people. I am dizzy and clumsy and topple sometimes but my speech is not affected yet. We have just started altering our bathroom to create a wet walk-in shower and room will be wheelchair friendly. Thinking ahead.

We have had another blow. My husband has to have a radical bladder removal due to cancer and adjust to a permanent bag. Such a psychological adjustment for him.

I would love to see a postcard.
Best wishes to Howard.
Liz

Hi Liz,
I've removed your home address from the public forum. It is safer not to share personal contact information on a public site. You can send Noreen your postal address by using the secure private messaging. To send a private message:
1. Click on the @username of the person you want to message.
2. Click Send Private Message.