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Central sensitization syndrome and treatment?

Chronic Pain | Last Active: Mar 20 3:13pm | Replies (28)

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Profile picture for Rachel, Volunteer Mentor @rwinney

Hi there @darby413. Hopefully you are feeling some sort of relief having a diagnosis of CSS which explains your ongoing chronic pain. I am sorry and understand the toll it takes in trying to figure out what's wrong and why.

Please take a look at the following video by Mayo Clinic's Dr. Sletten on central sensitization. The first thing is to truly understand what's happening inside your body and why, then, how to treat it -

Dr. Christopher Sletten - Central Sensitization Syndrome:


I'm impressed that you are open to non-drug treatments. It's wonderful that you are advocating for yourself. My CSS diagnosis meant that I had to learn and focus on lifestyle changes in order to better manage chronic symptoms.

Here are some discussions you may find helpful that share others experiences of living with CSS (*please keep in mind CSS may present differently for each person*).

Central Sensitization Syndrome - Please share your stories:
https://connect.mayoclinic.org/discussion/central-sensitization-please-share-your-stories/
And, my CSS journey of going through the 3 week Mayo Pain Rehab program -

Mayo Pain Rehab - Signing off and my comeback after:
https://connect.mayoclinic.org/discussion/mayo-pain-rehabilitation-program/
It can be a lot to take in, but there is hope, and living with CSS can become more manageable with work.

May I ask - how do you feel about your pain clinics' doctor's diagnosis of your pain? Do you feel that all other possibilities have been ruled out and you are agreeing that CSS is the final answer?

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Replies to "Hi there @darby413. Hopefully you are feeling some sort of relief having a diagnosis of CSS..."

Got this video from my physician a year ago i guess i didnt realize it was from mayo, i am 53 and recently diagnosed with central sensitization and have a 21 y/o son with NF1. i am unable to get an appointment at mayo for confirmation/treatment. i dont think my condition or my bank account have enough commas in it. unfortunate