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Cerebral Brain Atrophy: Anyone else out there?
Stroke & Cerebrovascular Diseases | Last Active: Aug 9 6:53am | Replies (272)Comment receiving replies
Hi Noreen,
You were looking for Liz Horne (@pec2884). This is the discussion where the two of you were talking. Simply post a reply here and she will get your message.
How is your husband doing, Noreen?
Replies to "Hi Noreen, You were looking for Liz Horne (@pec2884). This is the discussion where the two..."
@howardjames Dear Noreen: I just read the update on your husband's condition. How difficult it must be for him not to be able to communicate so that you can understand him. I see that you have a reason to be grateful in that he has no pain. How wonderful that you can find a positive in the middle of a trying time. Best wishes to you and your husband during 2017. Teresa
HI Noreen. I have seen your message. Have I replied before. I have sort off got a bit confused. Keep in touch'
Liz /@pec2884
Dear Liz,
Are you the one who lives in South Africa? I have not kept up with you, because I accidentally deleted your message. I was curious where you were diagnosed at. I know that they would not give you a timeline. Howard is progressing as Mayo Doctor said he would. When he consulted with Mayo Clinic the doctor gave him 3 to 4 years to live. He was walking without help at that time. It will be two years on January 5th. Now he is walking with a walker and has difficulty talking. But he keeps going and trying. He is out with a good friend who took him hunting.(what a friend!!!) We plan on driving to Alaska this spring when there is no snow coming. Our daughter lives up there. It is good to know that someone else has this. The moderator of the Mayo Clinic (Colleen) says that it is very rare. May you keep going strong!!!!
Noreen (HowardJames wife) Thank you to all who have sent words of encouragement and prayers!!!!
Dear Liz,
Are you the person who has cerebellum brain atrophy and live in South Africa. If you are then I have corresponded with you.
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Dear Colleen, thank you for your reply! My husband is progressing as the doctor at Mayo said he would. He is now walking with a walker as the cane was not enough. And he has trouble with speaking, so it's affecting his voice, and I have a hard time understanding him. He saw his local doctor and he said he thought he had about two years left. ( the doctor also said he had outlived the national average for the USA by two years) I am just amazed that the doctor at Mayo Clinic knew the process so accurately.
I want to continue to converse with Liz Horne so I hope she will read this. Thanks for having this forum. I feel so sorry for the people who have peripheral neuropathy and are in pain. At least Howard has no pain!!
Noreen (wife of Howard)