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Cerebral Brain Atrophy: Anyone else out there?
Stroke & Cerebrovascular Diseases | Last Active: Oct 1, 2023 | Replies (268)Comment receiving replies
It has been awhile since I posted to this site. My husband was diagnosed with cerebellum brain atrophy in January. of 2015 at Mayo Clinic in Rochester, Minnesota. The movement specialist there gave him 3 to 4 years to live. He is now walking with a cane but will soon progress to a walker and then wheelchair and would probably die of pneumonia. I have not heard from anyone with this diagnosis. He is clear of mind but his speech is getting very hard to understand. This is very hard for him as he was very physically fit and healthy. Is there any one who has the same diagnosis or is this very rare? Should he go somewhere else for diagnosis or is there anything to slow this down? Thank you for any responses.
Replies to "It has been awhile since I posted to this site. My husband was diagnosed with cerebellum..."
@howardjames Hi Noreen: I just noticed your post of a couple of days ago. You mentioned your husband's speech problem was making it difficult to understand him. Have you talked to anyone regarding seeing a speech therapist? I have a Parkinson's type disorder and I also have a paralyzed vocal cord for which I have had surgery. I now see a speech therapist for several sessions each year. I also use an EMST 150, it helps strengthen the expiratory muscles. When I use it on a regular basis I have less choking, coughing and better speech. I'm doing this to try to avoid pneumonia as well. In looking over your posts I'm not sure if you live near Mayo, however, you might consider the possibility of speech therapy. I'm sure your life would be richer if you could keep communication going for as long as possible. Once again my best wishes and prayers go with you both. Teresa
My husband has Parkinsons' and Demetia and it is very difficult to hear him speak. He was also having problems with aspiration pneumonia - several times per year. The docs at Mayo in Arizona injected Botox into is esphagus . It has not helped with the speech but he hasn't had aspiration pneumonia since they did it plus he can eat and swallow much better.<br><br>The Redhead<br><br>
Hi @tntredhead, you mention that your husband has Parkinson's and dementia. I'd like to invite you to join our Connect group talking about Parkinson's here: http://mayocl.in/2abXKUs
You may also wish to join the Caregivers group https://connect.mayoclinic.org/group/caregivers/, in particular this discussion Caregiving for dementia sufferers: http://mayocl.in/2ccA0jO
Welcome.
I haven't heard from you in awhile. How are you doing? We are now at our home in Homer, Alaska. We did travel trough Canada and stopped in Swift Current, Saskatchewan. Isn't that where your daughter lives? Howard is now walking with a walker with wheels. He does fall quite a bit, but, has not broken any bones. Where were you diagnosed at? We won't be returning to Michigan as we have sold our home there. This way we are closer to our daughter who can help out somewhat ( she has young children and home schools them. Just want to keep in touch with you as you are the only one I have found who has this dianosis.
Noreen (wife of Howard James)
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Glad you are back. I would like to keep in touch. The news is such a shock in one’s life. Almost incomprehensible to outsiders. I am at a far earlier stage and fighting back with Pilates and Bio kinetics.