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Looking for an article by Mayo Clinic doctors.

Posted by JustAnotherPhoenix @justanotherphoenix, Mar 31 2:36pm

Hi everyone. I hope your all having a decent day.

I am looking for an article I read a few years ago. If my memory is correct it was written by two Mayo Clinic doctors from Florida. It talked about how if you've been diagnosed with an inflammatory autoimmune disease you should be checked for brain inflammation. Can anyone help me find this by chance? Its at least three years old.

I was diagnosed with Ankylosing Spondylitis about three years ago and have been having some really bad neurological symptoms that get worse when I use my brain. As I have been trying to look for this article its causing my symptoms to flair. I was hoping the community could help me find it.

Thanks for checking out this post.

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JustAnotherPhoenix | @justanotherphoenix | Apr 1 10:45am

@windyshores
Windy I am so sorry too hear about the problems you face as well as your daughter. The intuition that people have with chronic health problems have and the bond between a parent and child are things science has yet to quantify.
That's a hard position to be in, making serious calls based on those things when the professionals either don't know or worse yet oppose it. I'm really glad she pulled out of that.

I think I have brain inflammation three ways. From tbi from autoimmune and from autism. I have been been asking my neurologist to look into this for three years. I have had to manage this stuff on my own for a long time. Its hard to believe that brain inflammation can cause such terrible problems. I've been having nerve pain for years, insomnia, brain fog, burning sensation in my head, seizures, twitches, "light" hallucinations like hearing or smelling things, just to name a few symptoms. I'm sure you know the deal. I wouldn't wish this on anyone. I hate that anyone including your daughter would ever experience this.

REPLY
1 reply
windyshores | @windyshores | Apr 1 10:49am
In reply to @justanotherphoenix "@windyshores Windy I am so sorry too hear about the problems you face as well as..." + (show)
@justanotherphoenix

@windyshores
Windy I am so sorry too hear about the problems you face as well as your daughter. The intuition that people have with chronic health problems have and the bond between a parent and child are things science has yet to quantify.
That's a hard position to be in, making serious calls based on those things when the professionals either don't know or worse yet oppose it. I'm really glad she pulled out of that.

I think I have brain inflammation three ways. From tbi from autoimmune and from autism. I have been been asking my neurologist to look into this for three years. I have had to manage this stuff on my own for a long time. Its hard to believe that brain inflammation can cause such terrible problems. I've been having nerve pain for years, insomnia, brain fog, burning sensation in my head, seizures, twitches, "light" hallucinations like hearing or smelling things, just to name a few symptoms. I'm sure you know the deal. I wouldn't wish this on anyone. I hate that anyone including your daughter would ever experience this.

Jump to this post

I have small hallucinations after a concussion (mainly with migraines). Nerve pain, prickling, numb, burning type sensations, I have been told, do not come from my brain. I am sorry you are dealing with all this.

REPLY
1 reply
JustAnotherPhoenix | @justanotherphoenix | Apr 1 11:07am
In reply to @windyshores "I have small hallucinations after a concussion (mainly with migraines). Nerve pain, prickling, numb, burning type..." + (show)
@windyshores

I have small hallucinations after a concussion (mainly with migraines). Nerve pain, prickling, numb, burning type sensations, I have been told, do not come from my brain. I am sorry you are dealing with all this.

Jump to this post

Well like I said yesterday my strategy is just to keep putting one foot in front of the other going to appointments and tracking down leads eventually something will turn up. I hope you get answers too.

REPLY
windyshores | @windyshores | Apr 1 11:10am

smell, not small
It has been 20 years for me...I don't do much pursuing answers anymore but good luck.

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