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Cerebral Brain Atrophy: Anyone else out there?
Stroke & Cerebrovascular Diseases | Last Active: Aug 9 6:53am | Replies (272)Comment receiving replies
We have been trying to connect with anyone who also has a diagnosis of cerebellum brain atrophy. How long have you had diagnosis and what was prognosis? Howard got diagnosis from Mayo Clinic in Rochester, Minn. in January of 2015. At that time there was a time line of 3 to 4 years to live. Any information would be appreciated.
Howard and Noreen
Replies to "We have been trying to connect with anyone who also has a diagnosis of cerebellum brain..."
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Hello Howard and Noreen:
I can understand about being frustrated trying to find people that share the diagnosis cerebellum brain atrophy.
I an working to do some research on this.
Yourself and @pettis are looking information and others to connect with.
Colleen has tagged many of the folks that have chimed in on this thread to bring those folks back to share any updates, things they may have learned and for support.
How long did it take you from the time you saw the doc to the time of diagnosis?
Peace
Larry H