We have been trying to connect with anyone who also has a diagnosis of cerebellum brain atrophy. How long have you had diagnosis and what was prognosis? Howard got diagnosis from Mayo Clinic in Rochester, Minn. in January of 2015. At that time there was a time line of 3 to 4 years to live. Any information would be appreciated.
Howard and Noreen

Hi @howardjames My husband is going through this now, being diagnosed with cerebellum atrophy. He is going to USF Morsani college of Medicine in Tampa Florida to have research done. What I can tell you is that his father and grandfather both had degeneration of the cerebellum. Both his father and grandfather passed away in their mid 50's. Both became bedridden and could not walk or talk by the end, both had passed within 3 to 4 years of being diagnosed. This is a hereditary disease with in his family. I have notice in my husband signs and symptoms that he might possibly have his father and grandfather hereditary disease for the last 8 years. He neglected to see doctors for many years when I insisted he see one cause he was becoming forgetful and clumsy. My husband is now 41.... He was found to have atrophy of the cerebellum January 2018 after being involved in an auto accident that he has no recollection of. He was seen at Blake Medical Trauma Center by a Neurologist that had ordered CT scan and MRI done of the brain to find what caused the accident. That is when he discovered Cerebellar ataxia spinosis/Cerebellum Atrophy/Cerebellar Degeneration. My suggestion is that you find a Neurologist that specializes in Cerebellum atrophy. From what I found in my searches for help is that not many Neurologist specialize in this field. I would look for Research centers or Medical Universities of Neurologist that are studying atrophy of the brain. Right now we are waiting to see a Neurologist that specializes in this field. We were fortunate the Neurologist that saw my husband at the Trauma hospital knew a Neurologist that studies this particular area of the brain.

Hi i have cerebal atrohy and smal vessel ischeamia disease with progression and some white matter i have just been left to get on with also struggling to walk slow walking shuffling muscle aches whitch slows me down further cognitive problems thinking p dropping things no energy please could you tell me if you think its cfs ms or parkinsons nobodys ever told me the reason why ive got the brain disease ordone more tests and a neorologist i saw one time said its not neurolical i dont have neurolical problems even a private neurologist said the same but everything i read says otherwise