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Cerebral Brain Atrophy: Anyone else out there?
Stroke & Cerebrovascular Diseases | Last Active: Aug 9 6:53am | Replies (272)Comment receiving replies
I still have not heard from anyone who has a diagnosis of cerebellum atrophy. Does no one have this dianosis? We have been to Mayo Clinic in Rochester, Mn. who gave him 3 to 4 years to live. He does not have Parkinson's disease although his ability to write has become illegible. His speech is becoming harder to understand. We have tried many sites but most are for Parkinson's studies or Alzheimer's. He has neither. His cerebellum is dying. Should we go somewhere else and where?
Replies to "I still have not heard from anyone who has a diagnosis of cerebellum atrophy. Does no..."
Hi. I had my first MRI of several in 2015 with identification of Cerebellar Atrophy. I also have dysarthria, restless legs, loss of balance, neurogenic bladder and more. I have seen numerous neurologists and the last neurologist identified inconsistencies in my MRI's. I'm not sure what is going on. Time will tell. Think positive. Talk with you later. Remember, think positive.
I am sorry for yor suffering. I too have an atrpophied cerbellum. The Medical world holds no answers, only questions. I, myself have seen 4 Neurologists,
walk witha cane in the house, and a walker without.
It is hard to live with this condition, but I readon this site of a child who has this condition and I have a 24 year old friend who has blood cancer...
Alex
Hi, I have a son who has cerebellum atrophy. He is going 33 . He has t h e same . Taking meds for it but really from what I have ga t here's it's a progressive .
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I have it too. I don’t think there is any cure or help for us. Mayo Clinic in Jacksonville showed me an x ray of my decreased cerebellum and suggested it was genetic. Had genetic test and it’s not genetic. Then why? I have been offered no hope or explanation. I have always lived a healthy lifestyle- walked every day, good heart and kidneys, no smoking or alcohol. Strange about the silence from doctors. Makes you mad, doesn’t it? No answers. I simultaneously developed Hydrocephalus (no reason given. Had a shunt placed in brain. Thinking got clearer but ataxia is worse. I tried stem cell therapy, but won’t know if it will work until October, since results come 6 months after treatment. My heart goes out to you and I would love to hear from you. The idea of slowly declining with no help on the horizon, and assisted suicide illegal, is beyond my idea of horrible. And yes, you sure do feel alone. Please let me know how you are.