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Cerebral Brain Atrophy: Anyone else out there?
Stroke & Cerebrovascular Diseases | Last Active: Aug 9 6:53am | Replies (272)Comment receiving replies
Yes, they are the ones who diagnosed it as home Doctors just kept doing tests with no diagnosis. Doctor at Mayo just said they were doing stem cell research. We have not been back as we live in Michigan and it's a long drive. We will check with Mayo in August to see if anything is new. I just can't believe that no one else has this.
Replies to "Yes, they are the ones who diagnosed it as home Doctors just kept doing tests with..."
@howardjames my grand daughter is 2 years old and was just recently diagnosed shee is now unable to walk and her speech is becoming impaired. I am looking for any kind of recommendations on questions for the drs tomorrow at her follow up apt i can get
Welcome to Connect, @chiefsfan75
I'd like to introduce you to @lisapraska, whose son was also diagnosed with Cerebral Brain Atrophy and ultimately with White-Sutton syndrome. In addition to this discussion , you may be interested in reading more in these discussions on Connect to help prepare questions for your appointment tomorrow.
- White-Sutton syndrome https://connect.mayoclinic.org/discussion/white-sutton-syndrome/
- Cerebral Brain Atrophy https://connect.mayoclinic.org/discussion/cerebral-brain-atrophy-yet/
Chiefsfan, will you be accompanying your granddaughter to the appointment as a second set of ears for her parents?
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Hi i have cerebal atrohy is it the same as cerebellar atrohy i was diagnosed in 20 11 at 47 now 55 years old ive just been left also have small vessel ischemia with progression and white matter also been left nobody given me any detailed info now my health has deteriatde slow walking muscle waekness and fatiuged achs muscle aches