← Return to Cerebral Brain Atrophy: Anyone else out there?

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@howardjames

I still have not heard from anyone else having cerebral atrophy diagnosis. Does anyone out there have a similar problem. Should we go anywhere else beside Mayo Clinic?

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Replies to "I still have not heard from anyone else having cerebral atrophy diagnosis. Does anyone out there..."

I have been diagnosed with an atrophied cerebellum with no obvious cause. A blood test has been sent to the Mayo Clinic.

I have it and just found out with an MRI and am scared. Also ischemic too.

I, Alex, have the same diagnosis; the Medical world has yet to wake up to this problem

Yes, my husband was recently diagnosed and has had to bleeds in two months requesting hospitalization. He’d apparently had several small bleeds as well as 2 large ones earlier. He was on Eliquis because of AFib and both his neurologist and cardiologist agreed that he needed to stop and avoid all blood thinners to prevent a massive stroke. There is no cure for this rare, totally unpredictable disease. It’s progressive and degenerative. I see people chasing cures, the right doctor, drug, test, cause - it’s irrelevant. None of them is a cure. There are treatments for some types and symptoms, but no cures. I’m terribly sorry. Believe me, I understand completely. Accept it, begin each day as a new day - enjoy what you can as long as you have it. It’s the most anyone gets.