Looking for an article by Mayo Clinic doctors.

Are you thinking of anti-NMDA receptor encephalitis , the subject of the book Brain on Fire?

Hello @justanotherphoenix, I would like to add my welcome along with @windyshores and others. I'm wondering if this 2020 article might be the one you are looking for? It's by Alfonso (Sebastian) S. Lopez Chiriboga, M.D., and Iris (Vanessa) V. Marin Collazo, M.D., neurologists in Multiple Sclerosis and Autoimmune Neurology at Mayo Clinic in Jacksonville, Florida, discuss autoimmune neurology, one of neurology's most rapidly evolving subspecialties.

--- Autoimmune neurology: Evolving care for immune-inflammatory diseases of the CNS: https://www.mayoclinic.org/medical-professionals/news/autoimmune-neurology-evolving-care-for-immune-inflammatory-diseases-of-the-cns/mqc-20480947

Thanks for the responses.

@windyshores
I'm not entirely sure about anti-NMDA receptor encephalitis. I have never read that book although I have heard of it. Now that you bring it up I may have to get a copy and read it.

@johnbishop
John I think that must have been the one I was looking for. It didn't look familiar to me when I clicked on it in my search. After I looked at it more carefully when you sent the link it jogged my memory and I found what I was looking for. Thanks for the helping hand.

@justanotherphoenix and @johnbishop thank you so much for bringing this up. I have had neuro symptoms (paresthesias, chills, numbness in face, nystagmus, central vertigo, with ANA as concerning as 1:5120 and highly positive antibodies for scleroderma). I also had an autoimmune reaction to cancer (paraneoplastic syndrome). My rheumatologists always say I am more "MS-y." My neurologist is very laid back. I had never heard of this specialty (autoimmune neurologist). Very helpful to others!

@windyshores
It has taken me years to find that information as well. I have an appointment upcoming with a neurologist that specializes in inflammatory autoimmune dieses. So fingers crossed. I hope to get into Mayo clinic failing this because I will be at a complete loss if this isn't it.

I feel like more people would benefit from knowing those types of doctors exist. I had to research medical literature and figure out what was wrong with me to even find out what type of doctor to see. Some people don't have the ability to do that though and I feel bad for them.

Just keep putting one foot in front of the other going to appointments and tracking down leads eventually something will turn up.

@windyshores
You may be interested to know a few other things I found out recently.

In talking to a care coordinator at Mayo Clinic I found out that they have alumni all over the U.S. Unfortunately though no neurologists in my area.

I also found this recently when looking for a nearby hart doctor.
mayoclinic org about-mayo-clinic care-network network-members
Apparently I'm not allowed to post a link but if you search the line above, the page should come up. I took out the slashes, w's and dots. It should be a map of other facilities whos doctors can consult with Mayo Clinic doctors.

That info might help you get more help if you live far away from the Mayo Clinic locations like I do.

https://www.mayoclinic.org/medical-professionals/neurology-neurosurgery/news/avoiding-misdiagnosis-of-autoimmune-encephalitis/mac-20541856

Hi @justanotherphoenix, I noticed that you wished to post a URL for @windyshores with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe.

Clearly the link is not spam. 🙂 Allow me to post it for you.

– Mayo Clinic Care Network https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members

You're right about the Mayo Clinic Care Network. It is a select group of independent health systems that are granted special access to Mayo Clinic's extensive knowledge and world-leading medical expertise. The Mayo Clinic Care Network helps keep care local by providing guidance and answers to many questions that might otherwise require a referral to a specialist.

My kid had autoimmune encephalitis, with psychosis. Twenty years ago before it was well-known. It was triggered by tetracycline (used for Lyme disease) which can trigger drug-induced lupus for those who are genetically susceptible (she has two autoimmune diseases). Her anti-dsDNA was positive, which is definitive for lupus. Doctors thought the psychosis was Lyme. I requested that the tetracycline be stopped and she got better in a few days.

@pb50
Thanks for dropping that little knowledge bomb into the discussion. I guess when you really need help you think that getting a diagnosis is a good thing but this reminds me to be careful and measured in my approach to everything not just healthcare.

@colleenyoung
Thanks so much for posting the link. I'm not a forum ninja yet so I don't know all the in's and out's. Thanks for the explanation as well. I hope I wasn't pushing the rules by chopping it up like that. I wouldn't have done it if it wasn't a Mayo Clinic link.