Ok, symptoms no worse and they don’t interfere with my life but unfortunately my platelets have been slowly rising and now at 790. Haematologist wants to to do blood tests to see if I am still Jak2 negative and also see if any other mutations. She says my age is now the problem (61) and says I will need to go on chemo, I will have to give it a go but as I told her if I cannot tolerate the drugs so far I don’t hold out much hope! I will still keep researching alternatives. I have to say though having spent 6 weeks in Spain in the winter I felt amazing, my symptoms almost all went away, haematologist said a few of her patients have said the same she said it is the vitamin D and that they reported it had lowered their platelets!

Good luck with your Anagrelide.