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DiscussionNorovirus in lung transplant patient: Can oregano oil be taken orally?
Transplants | Last Active: Apr 1 7:07pm | Replies (10)Comment receiving replies
Replies to "My pancreas transplant was 18 years ago, but I have a pretty good memory. I was..."
Hi, and thanks for replying. And congratulations on your own transplant! My sister's transplant was done I think in 2013-14. The Tacrolimus was immediately prescribed, but I don't think the Mycophenylate was. I do need to recheck that. My reason for doing so is that she did have a rejection episode last year, and I think it was only then that mycophenylate was added. So I want to know that. I may be wrong. Up to that point she was doing fairly well, but never completely recovered. But this virus, which apparently has no effective treatment, has been a real threat. The team finally ordered nitazoxanide, which according to most of the studies I've read, can help control symptoms like nausea, diarrhea, vomiting--all of which are life threatening if they persist. I did see one study that suggested the drug may have some direct effect on the virus itself. My disappointment is that the norovirus was not detected or the med ordered for weeks. It was only after our repeated suggestions that a stool sample be collected, that the order was written, and the norovirus identified. The suggestion/request for IV rehydration or nutritional support still has not been responded to with an order or any explanation. I can understand this in a case where high BP is a problem, but that is not true in this case. I'd like to see some labs drawn. I see that others have had similar issues. It looks to me like primary and transplant docs manage different areas of care, and there may be gaps and overlaps. Takeaway--learn as much as you can, communicate with your care team as much as you need to, and help them help you. That's what they want to do.