Who’s interested in a group for Ovarian cancer 60 and over?

I who be interested, I’m 70 yrs old and I had been in ovarian cancer remission for almost 3 year. I feel very blessed but I would be interested in anything that would help my remission and not having a recurrence. Thx!

Hi jb, took a break here. I’m in my late 60s , been 3 months since front line, and advised to take lynparza. I have copd, and vascular issues, very concerned about taking this. Thought it would be good idea to communicate with others in our age group. All of this is scary, not that it isn’t for the younger.
So happy to hear you’re 3 years out, did you have maintenance and what did you use and experience?
I love that you’re in remission, it’s hard to just let go of it, leave it in the past! Lol
I’m working at building my body back up, exercising and walking. Neuropathy gets me at night, took a couple gabapentin and fish oil, seems to be helping some. Use to walk 5 to 10 miles a day. Starting all over, trying to keep my spirits up and attention focused and persevere!
Thought this age group would be established, no offense to anyone. Glad you reached out.

I would be very interested I'm 64 diagnosed at 62 just had my first recurrence was NED 22 months finished Carbo/Taxol/Keytruda end of January maintenance Keytruda infusions every 6 weeks and letrozole as I have Endometroid 3B & Synchronous endometrial 1A. I think there's a lot of 60+ survivors out there.

I’m 63 and I’m interested, especially in meeting others going through recurrence. I’m in a group that meets monthly in person, but everyone else is in remission. When we meet, each one tells how long they’ve been cancer-free, and everyone claps and cheers. When it’s my turn, I describe my situation and just bum everyone out. Then the next lady talks about being in remission for five years and everyone cheers. I feel very alone in that group.

Yes, I’m interested. I’m 71 & was diagnosed this past June. Total shock, healthy my entire life, no underlying issues. Genetic testing came back negative. Frontline chemo, total abdominal hysterectomy in Sept, more chemo. NED in December. CA 125 doubled, pet scan showed a small area behind intestine. Currently on alternating Doxil/Avastin. Nose bleeds, mouth sores, neuropathy both feet & brown spots all over my back/upper arms, no itching, no pain. CT/Pet on 4/15. Terrible anxiety, what’s next? 🤦‍♀️

The anxiety can be tough. Mine has lessened over time, but is still sometimes paralyzing. The side effects of chemo are much worse this time. I tend to be very pessimistic. I would hate to maintain a positive outlook only to be crushed by bad news later. I’d rather prepare for the worst, and then be happily surprised if things get better.
Do you like and trust your doctors? Let them know about your anxiety. Is it keeping you from sleeping? If so, there are medications that can help.
I also find the serenity prayer helps a lot. I once went camping with friends. We didn’t bother with bringing tents, we just slept in our sleeping bags on the ground. I woke up in the middle of the night to a skunk sniffing around my backpack. It was only a foot from my head. I thought, “Well, nothing I can do about that,” and went back to sleep.

Thanks for the laugh. I just finished my 3rd cisplatin, Taxol and Jemperli. My gut hurts like (I try not to swear), hell.
My funniest haha camping story.....
We were in a state park in Wyoming and I was too afraid to stay in the tent. So long story short, they locked me in the back of the camper truck so I would be safe there. In the middle of the night I heard something making crawling noises on the floor of the truck right below me. I screamed and screamed but I guess they snored too loud to hear me. Next thing I remember is some boy scouts walking by the truck in the morning. Unloaded the truck but found nothing. Couldn't do anything about it. Just do your best.

I was originally diagnosed with Ovarian Cancer at the age of 45. A first recurrence at the age of 63 and now a second recurrence at the age of 78. Yup, I’ve been doing this, intermittently, for 33 years. My last event was 15 years ago, that’s like a hundred years in terms of medical advancements. What is new in terms of treatment for recurrent ovarian cancer?

I must say thanks to all for sharing experiences esp funny camping stories . I am 62 had first line treatment in 2022 for stage IIIB fallopian tube cancer had chemo & surgery in 2022, then diagnosed in Dec 2023 with early stage breast cancer which was discovered because I am BRCA1 found after ovarian cancer. I just finished lumpectomy and radiation and interested in finding others who have experienced double whammy. Trying to look on bright side since the extra surveillance definitely caught breast cancer. 😄

Immunotherapy is fairly new. It may not have been an option 15 years ago, and it certainly wasn’t an option 33 years ago. Immunotherapy drugs target cancer cells more efficiently than standard chemotherapy. But your oncologist is the best person to answer your question.
You certainly are a long-term survivor! Your treatment today may depend on what treatments you received in the past. It also depends on what kind of ovarian cancer you have and your general state of health. How was this recurrence diagnosed?