@brishawn24 @scoutmaster185 @mariancauwel - Here is an article from the Mayo Transplant
Blog/newsfeed article that was created from contributions by members in the Organ Transplant Group:
- What to Expect as a Transplant Caregiver
https://connect.mayoclinic.org/blog/transplant/newsfeed-post/what-to-expect-as-a-transplant-caregiver/
@brishawn24, It is not at all unusual for liver disease to creep up since symptoms are often 'silent' and go undiagnosed until there is already damage to the liver. My liver disease was caught by my very observant primary care doctor during my routine annual check-up. After referral during and monitoring with a gastroenterologist(GI) I lived relatively symptom-free for nearly 8 years before my physical health declined and I was evaluated for my transplant.
@scoutmaster185, I am a liver and kidney transplant recipient. I had my transplant at Mayo Rochester in 2009 with my husband as my caregiver. I know that it is an all-the-time stress to your mind and body, and I remember that it was for my husband, too. I would encourage you to focus only on the household duties that are a "Must".
I know that one of the most difficult things to do is to ask for help, but this is essentual for you to consider. My girlfriends used to come to visit with me while my husband ran errands or went for a jog. Have you given any thought to the kind of help that you would appreciate?
@mariancauwel, Has your daughter been evaluated yet for the transplant listing? If she is a Mayo patient, there are some online support groups available.
I want to invite all of you to this support group.
-Transplant Caregiver Advice: Got Tips to Share?
https://connect.mayoclinic.org/discussion/transplant-caregiver-advice-got-tips-to-share/?
I know that the 3 of you are new to the transplant journey. How about we each pour a cup of tea , grab a snack, and meet in this group with other transplant patients and caregivers. Hope to see you there.
@rosemarya hi! This is mariancauwel, my daughter is on the list, pancrease and kidney, I am still trying to navigate the tech stuff to really talk back and forth, I loved what you said about only do the must in the housekeeping I am trying to sterilize and what I really need is a friend caregiver that I can turn to, have a coffee and talk and listen as to how to help Marlo get thru this in the best outcome ways. Thank you for being my friend that I can’t see, just great to know ur not alone. We have a deep Faith but just nice to turn to someone who knows. Thank you.