Hi Sarah,
Great info, thanks!

Yeah, definitely lab interpretation is very skewed by docs who aren’t chronic disease specialists. Most just see high IgG and say that’s an old infection. My ID doc explained it really well saying IgM is high with acute infections and then IgG starts to kick in. IgG over like 500 is considered reactivated and IgM 200+ is considered reactivated.

I’ll check out tenofovir and keep in my back pocket to ask about if valacyclovir doesn’t work.

Interesting about valtrex/famvir + celebrex. I personally can’t take nsaids due to allergy. But I’ll check him out!

I got Pax via a doctor who I know personally. He wasn’t comfortable doing it but agreed to assist me until I could get into my LC ID doc.

I will say I got a little nervous taking it so long because I was having GI distress like diverticulitis and my gut is still trying to recover after stopping 5 weeks ago. It’s getting better being off of Pax. Also my ID doc was concerned about lack of safety data for long durations. She also thinks it was mainly the Ritonavir that helped me the most and I agree. So maybe something to the tenofovir.

It’s good to have more info to discuss with my doc.

I’m being seen at Centers for Complex Diseases. They only see people who live in California or Washington. You have to send a bio for them to vet if they can see you then it’s like 6 months before getting in…

Thanks for sharing all your deep dive info!