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Afraid will not be taken seriously

Autoimmune Diseases | Last Active: May 22 9:18am | Replies (54)

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@beth71

You are correct in that insurance causes some medical care restrictions, but unfortunately, this is an arrogant Infectious Disease MD who says he only treats diagnosed infections. The kicker is I did not have a diagnosis before I went to him the first time. He is adamant that it is not a reinfection and that he more than adequately treated me, but I and he has no clue beyond visual inspection of my forearm. That is scary since my disease can affect numerous organs/systems since it is Extra-Pulmonary, making it more of a diamond in the rough. These infections are rare and most affect the lungs, making mine more rare than rare 😒.

Had an Ultrasound of my upper legs yesterday. Radiologist gave measurements and gave fat necrosis as a possibility but no definitive diagnosis. That only occurs from trauma, surgery or some kind of injury… if not from these, pancreatic issues are the root cause like pancreatitis or pancreatic cancer. I have a pancreatic dysfunction with hyperinsulinism. Have found research related to fat necrosis and missed insulinomas. A biopsy is needed to determine if this is an infection or endocrine issue…

Either way, prayers for answers with appropriate treatment are needed. My medical challenges have taken me on a very long journey….

Beth

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Replies to "You are correct in that insurance causes some medical care restrictions, but unfortunately, this is an..."

@beth71 - I am so saddened to hear you have to TRY to engage with an "arrogant ID MD" at all!
(Do you have a choice of another doctor, even for a second opinion? or wait until you get the biopsy results to get a further opinion from a more engaged professional?

Please get that biopsy asap...I am thinking of you on your journey & how you might take a detour from this unhelpful, aggravating, stressful MD. It's just not right. 🤔