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Myelodysplastic Syndrome (MDS)
Blood Cancers & Disorders | Last Active: Mar 31 3:15pm | Replies (51)Comment receiving replies
Welcome to Connect @stevepark1955 I’m sorry to hear that your husband has another cancer issue. Cancer can be such a bear to overcome and unfortunately some of our meds aren’t discriminatory in what becomes collateral damage.
The positive news is his MDS is classified as low risk.
I see you posted in another MDS discussion here in the forum. There is a member in that conversation a little further back in posts who does have secondary MDS. There may be others as well but for now hopefully @jdaltonireland will be able to share their experience with you in this comment
https://connect.mayoclinic.org/comment/999026/
Is your husband receiving any treatment for this now?
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Thank you so much for responding. He is not taking anything at this moment. He is in a watch and wait period which we find very difficult to wrap our heads around. He has blood draw every three months as he has done for 8 years due to radiation killing his thyroid. We will continue to do every three months. Othe than lab results he is totally asymptomatic at this time. We do meet with a transplant team this month at mayo in Jacksonville so very have a ducks in a row should his risk level change.