Connect
← Return to Positive test results for amyloids
Discussion
Positive test results for amyloids
Blood Cancers & Disorders | Last Active: Jun 22, 2024 | Replies (19)Comment receiving replies
@colleenyoung Colleen, I am new to this form and I am being treated for Amyloidosis with a new immunotherapy (BiTE therapy) it has only been out for six months.
I would love to connect with others who have Amyloidosis or multiple myeloma who have had experiences with immunotherapy. Thanks so much!
Replies to "@colleenyoung Colleen, I am new to this form and I am being treated for Amyloidosis with..."
Hi @sherryzitter, it looks like you may be a trail blazer for BiTE therapy, bispecific T-cell engagers, or BiTEs for short.
For anyone else interested in this recently approved therapy, read more:
- Taking a BiTE Out of Cancer https://www.aacr.org/blog/2023/11/14/bites-help-immune-system-destroy-cancer-cells/
Sherry, would you mind starting a new discussion about BiTE Therapy? (Learn how in the tips in the Help Center https://connect.mayoclinic.org/help-center/)
Let's see if we can find more people who are getting this therapy or considering it. How long have you been on it?
I JUST got back a positive fat pad biopsy for amyloid. Prior to getting tested, I have been being treated with IVIG Privigin for polyneuropathy - I wonder if they will change that now.
Connect
I was just diagnosed with systemic amyloidosis al
I start chemo 4-8-24 am scared.
They said I’d have to do 4 months of weekly chemo then see how my light chain is reacting if is it good, then stem cell transplant.
It is a lot to take in and wrap your head around.