← Return to Abnormal bloodwork questions

Discussion

Abnormal bloodwork questions

Blood Cancers & Disorders | Last Active: Mar 30 3:07am | Replies (9)
Comment receiving replies
@sherryzitter

@loribmt thank you for this really helpful post, Lori! I had shortness of breath since 2013, was erroneously diagnosed with smoldering myeloma in 2019, and the year later finally diagnosed with amyloidosis and began treatment.

I know it is often under diagnosed, so it’s very important for us patients to advocate to have it tested if we have any of the symptoms or if we have multiple myeloma. My understanding is that almost 20% of patients with MM have Amyloidosis…

Jump to this post

Replies to "@loribmt thank you for this really helpful post, Lori! I had shortness of breath since 2013,..."
Lori, Volunteer Mentor | @loribmt | Mar 29 8:15am

Good morning, @sherryzitter. I’m so happy to see you’re jumping in with both feet into this amazing forum and already discovered one of the many Amyloidosis support discussions, along with this one on abnormal blood results. It can be so helpful to be among other people who are going through the same experiences.

You’ll be able to find more Amyloidosis members and discussions by typing Amyloidosis into the search bar above.

I read in one of your other comments that you’re receiving a new immunotherapy and having good results. This would be a great opportunity for you to share your story with other members.

This disease can impact so many areas of the body but from what you mentioned with shortness of breath, were your lungs involved?

VIEW AND REPLY