← Return to Cardiomyopathy

Discussion

Cardiomyopathy

Hypertrophic Cardiomyopathy (HCM) | Last Active: Oct 26, 2016 | Replies (30)

Comment receiving replies
@debcrawford

I have had Hypertrophic Obstructive Cardiomyopathy for 9 years, I am only 51 years old. I inherited it from my dad, its genetic and have had my 3 kids checked. The wall between my right and left ventricle is between a 2.9 and 3.0. I fight chest pain, severe chest pressure, exhaustion ( I could sleep all day and night) shortness of breath and easily winded walking and going up and down the staires, the heat really bothers me and I have passed out a couple times.
Three and a half weeks ago I had a Pacemaker/Defibrillator put in and they started me on a drug they don't use much called Norpace, I havent noticed any change and the drug has given me some side effects such as blurry vision and forgetfulness. We decided today to take me off of it and up my dosage for Metoprolol and started me back on a higher dose of Verapamil. My Cardiologist is also contacting Mayo in Rochester MN.for a consultation for a Myectomy.

Jump to this post


Replies to "I have had Hypertrophic Obstructive Cardiomyopathy for 9 years, I am only 51 years old. I..."

Hi Deb,
You sound alot like me. I am also 51, and have HCM. My dad also had it, and his brother and father before him. I had a myectomy at Mayo 10 years ago after going through all the drugs, including Norpace. It helped me for a few years, but then I went on to myectomy at Mayo. It helped alot.

If you would like, you can read all about my experiences at Mayo:
http://www.cynthiassummeradventure.blogspot.com
Also, I have a newer blog with a page of resources about myectomy:
http://www.hcmbeat.com/resources/resources-for-patients-about-myectomy/
I hope that helps you figure out more about what to look forward to in the future. It is scary to go through open heart surgery, but very worth it in the end, I found.