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Replies to "I have had Hypertrophic Obstructive Cardiomyopathy for 9 years, I am only 51 years old. I..."
Hypertrophic Cardiomyopathy (HCM) | Last Active: Oct 26, 2016 | Replies (30)
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Replies to "I have had Hypertrophic Obstructive Cardiomyopathy for 9 years, I am only 51 years old. I..."
Hi Deb,
You sound alot like me. I am also 51, and have HCM. My dad also had it, and his brother and father before him. I had a myectomy at Mayo 10 years ago after going through all the drugs, including Norpace. It helped me for a few years, but then I went on to myectomy at Mayo. It helped alot.
If you would like, you can read all about my experiences at Mayo:
http://www.cynthiassummeradventure.blogspot.com
Also, I have a newer blog with a page of resources about myectomy:
http://www.hcmbeat.com/resources/resources-for-patients-about-myectomy/
I hope that helps you figure out more about what to look forward to in the future. It is scary to go through open heart surgery, but very worth it in the end, I found.