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Medical Marijuana has gained a lot of attention recently, and for good reason. There is evidence that it might help treat various conditions, not only chronic pain from hypermobility. However, there is still a lot we don't know, like how (and if) it works . Research studies are underway in the US and abroad, so we will have to keep an open mind and consider each patient individually when discussing this as a treatment option. For example, there may be safer more reliable treatment approaches to take prior to experimenting with medical marijuana. For hEDS/HSD patients, these include 1st – PT/OT, then heat therapy (heating pads, warm baths, etc), acupuncture, TENS units, massage, craniosacral therapy (CST), and topical medications. The latter come in all varieties, over-the-counter products like Biofreeze, Capsaicin based creams, CBD oils, etc. Some of these in combination may be better than any one alone.
If medical marijuana is being considered, beware that the two most significant side effects are brain fog and fatigue. Many patients suffer from these already because of hEDS/HSD. Other adverse effects include altered brain function that leave patients unable to work, forgetfulness, and loss of interest in doing things. There is also risk for dependence. For these reasons, it may be better to find a formulation with less or no THC, and higher in CBD. Having said this, many of our patients do find relief from medical marijuana and are able to tolerate the side effects of fatigue and impaired memory. If you feel like you have exhausted all other modalities listed above, then this would be a good time to continue the conversation with your primary doctor, to see if they will recommend medical marijuana. Currently, the FDA has not approved the use of medical cannabis, so Mayo Clinic in Florida does not certify people for medical marijuana or allow its use on campus or in the hospital. If you would like to read more on the topic, Mayo Clinic has a helpful guide. Stay tuned for more topics related to hEDS/HSD, treatments, and research here.
Author: Dacre Knight, MD, MS
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I use medical marijuana for PTSD, anviety, and self harm urges as per my psychiatrist's recommendation. Many times it's the only thing that decreases anxiety and even keep me from doing self harm. I find, for me, the trick is the dose and the balance of CBD & THC. I use 1 part CBD -1 part THC, but I find if I take the normally prescribed amt I do get cloudy thinking and tired. I cut my dose in half and my anxiety decreases and my head stays clear, and because I use an oral form the effects last longer--one dose is enough to get me through a hard day. I don't use it daily, just when I need to. If I have severe self harm urges, I use a larger dose and those urges have subsided.
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6 ReactionsI've been using medical Marijuana for many years now. Doctors would prescribe narcotics and muscle relaxers every time my back and pelvis twisted out of alignment which happens all the time. They became candy that I couldn't get enough of and just wouldn't make the pain go away. It effected my family and friends. My doctor talked me into trying it. Been a lifesaver. You need to find what works for you and dosages. CBD does nothing for me. The hybrid edibles are good for me when I will be out and about for a while. They do last a few hours. MM is a relaxer and if my muscles can relax, I find that I'm in less pain. I also want to comment that everyone reacts differently with Marijuana. It helps keep me focused as I also have ADHD. Higher THC works well for me in small amounts throughout the day. It's expensive but experimenting with it will help find the correct strain/dosage that will work for you.
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2 ReactionsThank you for sharing this information.
Good to see this! I've been using medical cannabis -- in Canada -- for several years, suggested by my physician, and prescribed by my Nurse Practitioner. I use micro dosed oils of CBD during the day, and balanced CBD/THC before bed. It helps with my pain, and it helps me to sleep better.