← Return to Conflicted/Confused, any Guidance/Advice out there?

Discussion

Conflicted/Confused, any Guidance/Advice out there?

Prostate Cancer | Last Active: Mar 31 2:33pm | Replies (72)

Comment receiving replies
@ecurb

UFTPI=? Asked my wife to verify the doctor said- > 2.0 is when a PSMA pet scan is done. Not .02. My cause was agent Orange. My PSA never exceeded 14. , but the cancer was stage 4 Gleason 9-10. Said it had meta sized to pelvic lymph nodes so RT was done last year at this time along with Arbiterone/ Prednidone.-ADT. It’s been below 0.01 until I had in incontensnce causing anal fissure/ hemorrhoids. Went to 0.28 PSA. Now I m taking medicine to soften stool so I m back below .01. Told medical oncologist that I eat lots of MUSHROOMS too to keep PSA down. Also getting Zytiga/Trelstar butt shot every 3 months. Thanks for your long response to me. I m on contact with Mayo and Dr. Eugene quon don’t take patients unless their over 1.5 PSA. My records are on Epic- they can see my test results all over America. Also had a stent put in my heart too a hear and a half ago- RCA 95% plugged. On blood thinners. Can walk the treadmill (mile) in 18.00 min. Hope you enjoyed all this BS reading. Take care. Bruce

Jump to this post


Replies to "UFTPI=? Asked my wife to verify the doctor said- > 2.0 is when a PSMA pet..."

@ecurb
Bruce, don't consider BS at all. Sounds like you keep up to date on PSA information and treatments. I think I see above you put a ? for UFPTI.

In Jacksonville Florida UFPTI is University of Florida Proton Therapy Institute. It is a huge modern treatment facility using proton radiaton. Has 5 different gantries and all have been udated to latest technology. They have been doing proton radiation treatments since 2006 and paitents from every state and I think over 50 countries have come there. I went there because Mayo Jacksonville (I live close to) does not have proton radiation just photon but are building a new cancer center that will have proton.

That EPIC system is great for doctors to be able to see records and tests.
Take care and good luck!