My PCP won't refer me for specialist or authorize MRI

Posted by johnnyspine @johnnyspine, Mar 23 11:42pm

First I had surgery for severe nerve compression in 2021 at L4-L5.

I've been suffering from neck and shoulder pain for the last ten years or so. I've had 2 cervical epidurals and 2 facet RFAs by pain management without much relief. I was told they couldn't do anything else and might be muscle related. I've been getting botox injections in my neck without much relief.

My latest setback was about 2 weeks ago when my lower back and legs started to hurt very badly and I couldn't walk so I went to the ER. They did a CT and gave pain meds and a walker. I also had neck and shoulder pain that increased this day. I also had numbness and tingling in my feet, arm and hand.

My impression for the CT is below...
IMPRESSION:
1. BULGING DISC WITH DISC PROTRUSION AT L2-L3, MODERATELY
COMPRESSING THE THECAL SAC
2. BULGING DISC AT L4-L5, MILDLY COMPRESSING THE THECAL SAC AND
CAUSING BILATERAL SUBARTICULAR RECESS STENOSIS
3. MILD BULGING DISC AT L5-S1

My last cervical MRI was done in 2022 and these are the impressions below...

C1-C2: Normally aligned, without stenosis.

C2-C3: Partial disc desiccation, without loss of disc height, disc
herniation or spinal stenosis.

C3-C4: Partial disc desiccation, mild diffuse disc space narrowing,
and small left uncovertebral spur contributing to mild left neural
foraminal encroachment. No sign of residual posterior disc bulge.

C4-C5: Partial disc desiccation, mild diffuse disc space narrowing
and small left uncovertebral spur contributing to mild left neural
foraminal encroachment. Previously seen small central disc protrusion
is no longer seen.

C5-C6: Partial disc desiccation with interval mild diffuse disc space
narrowing and small interval central posterior disc protrusion
partially effacing the ventral subarachnoid space, without cord
compression or significant neural foraminal stenosis.

C6-C7: Partial disc desiccation with mild disc space narrowing
interval small central posterior disc protrusion partially effacing
the ventral subarachnoid space, without cord compression or neural
foraminal encroachment.

C7-T1: Partial disc desiccation, without significant loss of disc
height, disc herniation or spinal stenosis.

I was given a steroid dose pack which has helped but I'm still in pain and doing anything just makes the pain flare up. I was given a catheter by my PCP because it was extremely difficult to pee but that passed a day later thankfully.

So I currently have moderate pain in my neck, shoulders, lower back and mild pain in my legs. I have off and on headaches with sudden aches that radiate from the lower back left of my head and ear and up, partial numbness in my right hand, sharp stabbing pain on the left side of my chest, sharp pain and tingling down my left arm, sharp and dull pains off and on in my lower back and legs and tingling in my right foot.

Even with all this she won't prescribe pain meds, she won't order further testing (MRI or newer cervical MRI) or refer me to a pain doctor or to a spine surgeon (as the ER doc strongly urged). She says if I have a flareup I can see her to get a toradol injection or get it at an urgent care center if her office is closed or go to the ER if it's severe enough.

I'm at my wits end and don't know what I can do about this. I can change PCP docs but it won't go into effect until May 1st because I have to see her in early April to get my last authorization for another treatment which is very expensive.

Sorry for being so long on this post and am hoping for any advice.

Thanks!

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@johnnyspine

medicare advantage chronic special needs plan. every er visit costs me a $150 copay.

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Try going to urgent care first, then if they send you to the ER you won’t have to pay the $150 co-pay. That’s how my Medicare advantage plan works.

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I would change PCPs as quickly as you can if you’ve talked to them and they’re still unwilling. Is it an option to get first available with a different PCP, NP, PA, anyone?

But a referral would only be necessary if your insurance or the medical system you’re in requires it (this is one reason I Never choose an HMO; I will pay more if I must to have more control over my healthcare).

But even if you can direct schedule with a specialist, it would be a months long wait and with your pain levels you’ll want help sooner…which is where a more supportive PCP would help.

I’m so sorry this is happening to you.

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Prescribe-Order-Refer.....These are 3 key words in your posting. Why do you need a "Referral" to see a specialist? What type of insurance do you have?

If she is not a Pain Management physician, then I'm not surprised she won't Prescribe pain medications.

I just think this physician of yours is not really taking your health needs into consideration and I would look for a new PCP.

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@johnnyspine

I'm trying to get her to let me see my prior neurosurgeon who is in network still.

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I’ve heard that telling the doctor to please document your request for a referral and her refusal to do so. Possibly send that to her email (if you have an online portal) that may get you the referral you need. I never understand why things like this happen. It’s no skin off their nose to send you to a pain specialist or whatever kind of doc you request. Best of luck!

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@denman55

Prescribe-Order-Refer.....These are 3 key words in your posting. Why do you need a "Referral" to see a specialist? What type of insurance do you have?

If she is not a Pain Management physician, then I'm not surprised she won't Prescribe pain medications.

I just think this physician of yours is not really taking your health needs into consideration and I would look for a new PCP.

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I'm on Medicare and referrals are required to see any specialist.

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Then you must be on Medicare ADVANTAGE....

I am on Regular Medicare and Referrals are NOT required.

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@babs10

I'm on Medicare and referrals are required to see any specialist.

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Then again, you must be on Medicare ADVANTAGE and not Regular Medicare.
I have never once had a referral to go to a specialist and Medicare has paid every claim that was submitted by those specialists.

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@denman55

Then again, you must be on Medicare ADVANTAGE and not Regular Medicare.
I have never once had a referral to go to a specialist and Medicare has paid every claim that was submitted by those specialists.

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I'm on the traditional medicare plan, not an advantage plan. I am not able to make an appointment with a specialist without a referral from my PCP. Once I have the referral, all claims are paid., and it's not required for all specialists - but I did have to get a referral for an endocrinologist and for a rheumatologist. I was caught off guard, but did as I was told since I needed to see these MDs. The specialists wouldn't even talk to me, muchless make an appointment with me before I had the referral. I wonder if it varies by state?

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I agree- Medicare doesn't require authorizations.
The specialist may say they need one- but Medicare allows you to choose- in fact I've called the specialist first and then told the PCP.
I agree with being the squeaky wheel- the goal is to get the best care possible. I also don't see why the doctor says no, although sometimes egos can get involved within the system?- or between you and the doctor.
Good luck!

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@gpowr23

I agree- Medicare doesn't require authorizations.
The specialist may say they need one- but Medicare allows you to choose- in fact I've called the specialist first and then told the PCP.
I agree with being the squeaky wheel- the goal is to get the best care possible. I also don't see why the doctor says no, although sometimes egos can get involved within the system?- or between you and the doctor.
Good luck!

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@gpowr23, I couldn't take a step past the lions at the gate without a referral from my PCP. They would not make an appointment for me without the prior authorization. I wonder if it varies by state?

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