I don't remember any of the details, but my niece's husband had something like this. It was a somewhat gradual process and eventually got to the point that even swallowing was difficult and he had a massive weight loss. They live in Sweden so the healthcare process is different there. He initially had some type of an outpatient procedure to try and open the trachea/esophagus. That failed and he was streamlined for inpatient surgery. There was not a mass or anything similar to that. I'm sorry I've forgotten what the name of what the disorder was. The surgery was highly successful and he is now completely well. I hope you can get people with experience for the treatment that's been recommended for you.