Similar situation, but younger diagnoses, 2016, now 73. My Pluvicto # 3 was 02/27/24. Side effects are much less than Chemo, for me. On Chemo my PSA remained constant in the 10-11 range. My last PSA on Pluvicto was 2.3.
My concern is what comes next; at this point only one 6 treatment program is available. Things may change and additional treatments are being developed.
Hugs and prayers.
Thank you very much for your kind words. I'm glad to hear that your PSA has come down significantly! I agree with your concerns regarding what comes next. If patients do well with Pluvicto, what treatment protocol will they get after the six injections? I am very hopeful about new developments on the horizon. Hugs and prayers for you, too.
Please don"t worry about what happens after the 6 treatments which will take 36 weeks to complete. Concentrate on tomorrows interview ! Your dad needs to appear healthy , He must walk in , no wheelchair. You can use a wheel chair then when you get close to the interview room leave the wheelchair behind and have him walk the last few steps. Give him pain meds but not so much as to make him drowsy . you"ll be in there for about 30-45 minutes. Rehearse the answers to their questions. question : has he fallen in the last year ? answer: NO. question: does he have diarrhea or is he constipated? answer: NO. question: does he have control of his bodily functions? answer Yes. question: does he have a good appetite? answer: Yes. question: is he depressed ? answer: NO. question: does he have a strong support system at home? answer: Yes. question what is his pain level ? answer: about 3 right now but occasionally goes higher to 5 or 6. question: does he walk and exercise ? answer: Yes. Remember, positive answers to all question. Tell dad to think happy thoughts during interview. Go to drug store and get pain relief cream and apply it to his back in the parking lot of the hospital. Important for you to stay calm and positive during interview. Your going to do fine, no worries ! Gene
I want to thank you all for your information.
I get my 2nd treatment on April 25th.im anxious and hopeful about theses treatments
I will continue reading these posts.
Best wishes and great results to all of us
We must keep the faith
I want to thank you all for your information.
I get my 2nd treatment on April 25th.im anxious and hopeful about theses treatments
I will continue reading these posts.
Best wishes and great results to all of us
We must keep the faith
After my second infusion of Pluvicto, my PSA dropped from >1400 to 58!! Stay the course and expect more than favorable outcomes. Never underestimate the power of prayer.
Please don"t worry about what happens after the 6 treatments which will take 36 weeks to complete. Concentrate on tomorrows interview ! Your dad needs to appear healthy , He must walk in , no wheelchair. You can use a wheel chair then when you get close to the interview room leave the wheelchair behind and have him walk the last few steps. Give him pain meds but not so much as to make him drowsy . you"ll be in there for about 30-45 minutes. Rehearse the answers to their questions. question : has he fallen in the last year ? answer: NO. question: does he have diarrhea or is he constipated? answer: NO. question: does he have control of his bodily functions? answer Yes. question: does he have a good appetite? answer: Yes. question: is he depressed ? answer: NO. question: does he have a strong support system at home? answer: Yes. question what is his pain level ? answer: about 3 right now but occasionally goes higher to 5 or 6. question: does he walk and exercise ? answer: Yes. Remember, positive answers to all question. Tell dad to think happy thoughts during interview. Go to drug store and get pain relief cream and apply it to his back in the parking lot of the hospital. Important for you to stay calm and positive during interview. Your going to do fine, no worries ! Gene
Gene, thank you for all your information and your recommendations. Dad's appointment was this morning and it went really well. Pending approval by his insurance providers, he will start therapy with Pluvicto in the next two to three weeks! It was a stressful day, but all the preparation and planning paid off. Dad and I met with the nuclear medicine nurse and one of the doctors and we had a very positive conversation. After the discussion, I think we're prepared to move forward with the treatment as soon as we're approved. I'm just so glad to have the chance to do something that might help. Thank you!
Gene, thank you for all your information and your recommendations. Dad's appointment was this morning and it went really well. Pending approval by his insurance providers, he will start therapy with Pluvicto in the next two to three weeks! It was a stressful day, but all the preparation and planning paid off. Dad and I met with the nuclear medicine nurse and one of the doctors and we had a very positive conversation. After the discussion, I think we're prepared to move forward with the treatment as soon as we're approved. I'm just so glad to have the chance to do something that might help. Thank you!
I've just started Pluvicto after 18 years of fighting metastatic prostate cancer. We've kept it at bay all this time,. but now the PSA is taking off.
Any word of advice is welcome.
Thanks.
I've just started Pluvicto after 18 years of fighting metastatic prostate cancer. We've kept it at bay all this time,. but now the PSA is taking off.
Any word of advice is welcome.
Thanks.
My husband is scheduled for his third Pluvicto infusion in ten days. He was first diagnosed in 2005 and has had metastatic prostate cancer since 2011. He had chemo/docetaxel in 2016, and after that spot radiation and Zytiga kept the cancer at bay and even in remission for years. In late 2023 the metastases started to appear quickly and in many locations on his spine, so Pluvicto was recommended, which he started in January 2024.
You will find the side effects of Pluvicto to be much milder than those after chemo, mostly fatigue and changes in appetite and how appealing food seems. The blood tests and scans you have before and after each Pluvicto infusion will indicate how effective the treatments are against your cancer and how well your body is tolerating them, and you are likely to have a PSMA PET after a few infusions to check how well the Pluvicto is doing.
Pluvicto is a long process over many months, so prepare yourself to hang in there. Good luck to you. Please ask any time you have specific questions.
I've just started Pluvicto after 18 years of fighting metastatic prostate cancer. We've kept it at bay all this time,. but now the PSA is taking off.
Any word of advice is welcome.
Thanks.
I've just started Pluvicto after 18 years of fighting metastatic prostate cancer. We've kept it at bay all this time,. but now the PSA is taking off.
Any word of advice is welcome.
Thanks.
Similar report on side effects for my husband, who has had three Pluvicto treatments with three more to go. Side effects have been much easier to tolerate than chemo -- mostly fatigue for a few days and dry mouth is now ongoing after three treatments but tolerable.
Tips: He was advised by treatment staff to take anti-nausea meds the day of treatment and following. (Take the morning of your treatment to get ahead of nausea). This has worked very well.
Also, my husband requested of the oncologist to have hydration therapy the day following the treatment. He gets an IV following the post-therapy monitoring scan. Although he is actively hydrating by mouth, the post-therapy IV appears to help him combat side effects and ensure that the radiation passes through his body as it needs to.
Good luck with your treatment -- my husband's results have been significant in reducing cancer and preventing progression.
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Thank you very much for your kind words. I'm glad to hear that your PSA has come down significantly! I agree with your concerns regarding what comes next. If patients do well with Pluvicto, what treatment protocol will they get after the six injections? I am very hopeful about new developments on the horizon. Hugs and prayers for you, too.
Please don"t worry about what happens after the 6 treatments which will take 36 weeks to complete. Concentrate on tomorrows interview ! Your dad needs to appear healthy , He must walk in , no wheelchair. You can use a wheel chair then when you get close to the interview room leave the wheelchair behind and have him walk the last few steps. Give him pain meds but not so much as to make him drowsy . you"ll be in there for about 30-45 minutes. Rehearse the answers to their questions. question : has he fallen in the last year ? answer: NO. question: does he have diarrhea or is he constipated? answer: NO. question: does he have control of his bodily functions? answer Yes. question: does he have a good appetite? answer: Yes. question: is he depressed ? answer: NO. question: does he have a strong support system at home? answer: Yes. question what is his pain level ? answer: about 3 right now but occasionally goes higher to 5 or 6. question: does he walk and exercise ? answer: Yes. Remember, positive answers to all question. Tell dad to think happy thoughts during interview. Go to drug store and get pain relief cream and apply it to his back in the parking lot of the hospital. Important for you to stay calm and positive during interview. Your going to do fine, no worries ! Gene
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2 ReactionsI want to thank you all for your information.
I get my 2nd treatment on April 25th.im anxious and hopeful about theses treatments
I will continue reading these posts.
Best wishes and great results to all of us
We must keep the faith
After my second infusion of Pluvicto, my PSA dropped from >1400 to 58!! Stay the course and expect more than favorable outcomes. Never underestimate the power of prayer.
-
Like -
Helpful -
Hug
3 ReactionsGene, thank you for all your information and your recommendations. Dad's appointment was this morning and it went really well. Pending approval by his insurance providers, he will start therapy with Pluvicto in the next two to three weeks! It was a stressful day, but all the preparation and planning paid off. Dad and I met with the nuclear medicine nurse and one of the doctors and we had a very positive conversation. After the discussion, I think we're prepared to move forward with the treatment as soon as we're approved. I'm just so glad to have the chance to do something that might help. Thank you!
-
Like -
Helpful -
Hug
4 ReactionsGreat news! You got through the hard part. If he has medicare you should be good to go. Lets talk before he has his first treatment. God Bless, Gene
I've just started Pluvicto after 18 years of fighting metastatic prostate cancer. We've kept it at bay all this time,. but now the PSA is taking off.
Any word of advice is welcome.
Thanks.
My husband is scheduled for his third Pluvicto infusion in ten days. He was first diagnosed in 2005 and has had metastatic prostate cancer since 2011. He had chemo/docetaxel in 2016, and after that spot radiation and Zytiga kept the cancer at bay and even in remission for years. In late 2023 the metastases started to appear quickly and in many locations on his spine, so Pluvicto was recommended, which he started in January 2024.
You will find the side effects of Pluvicto to be much milder than those after chemo, mostly fatigue and changes in appetite and how appealing food seems. The blood tests and scans you have before and after each Pluvicto infusion will indicate how effective the treatments are against your cancer and how well your body is tolerating them, and you are likely to have a PSMA PET after a few infusions to check how well the Pluvicto is doing.
Pluvicto is a long process over many months, so prepare yourself to hang in there. Good luck to you. Please ask any time you have specific questions.
-
Like -
Helpful -
Hug
3 ReactionsThank you for your input. Your husband's experience parallels my own, except for the chemo.
I will report as my treatment continues.
Similar report on side effects for my husband, who has had three Pluvicto treatments with three more to go. Side effects have been much easier to tolerate than chemo -- mostly fatigue for a few days and dry mouth is now ongoing after three treatments but tolerable.
Tips: He was advised by treatment staff to take anti-nausea meds the day of treatment and following. (Take the morning of your treatment to get ahead of nausea). This has worked very well.
Also, my husband requested of the oncologist to have hydration therapy the day following the treatment. He gets an IV following the post-therapy monitoring scan. Although he is actively hydrating by mouth, the post-therapy IV appears to help him combat side effects and ensure that the radiation passes through his body as it needs to.
Good luck with your treatment -- my husband's results have been significant in reducing cancer and preventing progression.
-
Like -
Helpful -
Hug
1 Reaction