← Return to Interested in how other caregivers survive

Discussion

Interested in how other caregivers survive

Caregivers | Last Active: Aug 4 11:08am | Replies (123)

Comment receiving replies
@cehunt57

@mariancauwel welcome to Mayo Clinic Connect. I don’t usually follow the Caregivers group but I heard about you from Rosemary, Volunteer Mentor, @rosemarya. She is a real gem and has had two transplants herself (liver and kidney). She sent me your Mayo Clinic Connect handle and post because I am a post pancreas transplant patient (2005). I am currently anticipating a kidney transplant at some point.

I love transplant stories and am truly committed to the process. In regards to what to eat upon returning home after the surgeries I think @rosemarya and @gingerw (another gem) already offered up some great advice. In addition to that I would recommend advancing the diet SLOWLY such as clear liquids, full liquids, soft / bland solids to normal. I say this not so much about transplants but because these are major surgeries. You really don’t want to rush the digestive system to get back to normal too quickly. The transplant team should include a nutritionist / dietician that can advise on details relevant to pancreas and kidney diet. After my pancreas transplant I found that I was very comfortable continuing to follow my diabetic eating plan. I was just extremely grateful that my blood sugars were FINALLY controlled. Prior to the transplant NOTHING worked and I had lots of diabetic complications. Thank God (literally) things are better now.

So are you the future transplant recipient or is Marlo? Where is this going to happen? Are you on a UNOS list awaiting “the call”? This is really exciting! Once it happens things move quickly. It can be overwhelming but we are here and happy to help however we can. I will personally keep you and Marlo in my thoughts and prayers. I look forward to hearing another successful transplant story in the near future!

Jump to this post


Replies to "@mariancauwel welcome to Mayo Clinic Connect. I don’t usually follow the Caregivers group but I heard..."

@cehunt57 Good morning Cheryl, hope that’s correct as I am new. Thank u so much for ur info it is soooo helpful. My daughter Marlo is having transplant, she is on the list, we are waiting, we are so grateful for all who the loving donors and their beautiful families, and I am grateful for this support group, just need to learn system, still not there yet but trying. Thank u for sharing I find such hope in you. We live in Glendale Az, I don’t even know if I am connected to right support group, but I ve found such hope here. Thank you for helping me and therefore I can help Marlo. Blessings.