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Im 64 and my blood platelets have been in the low 530-550 range for yr

Blood Cancers & Disorders | Last Active: Mar 26 5:08pm | Replies (14)
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@nyjean

Hi Kevin --
Recently diagnosed with ET with numbers close to yours. Have you had genetic testing? It turns out I have a genetic mutation JAK2, which is involved in about half of ET cases (according to what I read here). Started taking HU daily with no side effects & my platelet count has dropped to 340. Seeing my doctor this week if it's looking good medication might be reduced to fewer days per week.

The diagnosis was scary but I'm feeling much more positive now. Just read a post here by a guy who was diagnosed 30 years ago!

All best.

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Replies to "Hi Kevin -- Recently diagnosed with ET with numbers close to yours. Have you had genetic..."
mrkevinl | @mrkevinl | Mar 24 6:38pm

Thank you for your reply & for sharing. It sounds like you & I have the same problem. No I haven’t had genetic testing. I don’t know if that would provide anything useful. I have heard this disorder is very rare. I stated at 527 after my bone marrow biopsy. I started with HU 500mg daily for a month & my platelets went down & up over 4 weeks. Doctor told me to try 1000mg per day & now my results are down to 411. I’m happy with that at soon to be 65. My doctor said that she thinks the outcome will be ok & that majority live normal lives with ET.

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