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Anyone have Cutaneous T Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Mar 4 4:02pm | Replies (178)
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@norseman44

Just over a year ago I was diagnosed with Sezary Syndrome which is a rare form of T Cell Lymphoma.
First line of treatment was Methotrexate & ECP. When slow to respond I moved on to Chlorambucil then to Brentuximab.

Currently on Mogamulizumab with ECP but unfortunately I have developed a rash & have become diabetic so expecting to discontinue.
Anyone else have similar experience? And what was next step?

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Replies to "Just over a year ago I was diagnosed with Sezary Syndrome which is a rare form..."
martinsmckinney | @martinsmckinney | Mar 4 4:02pm

Norseman44,
Have you tried IVIG? I too have Sezary and it cleared my skin all over and I feel wonderful. Best I have been in 5 years.
Cheers,
Martin

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