← Return to New to exocrine pancreatic insufficiency (EPI): What helps?

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@geegeebabe

I was diagnosed with EPI in November 2023. I take ZENPEP because Medicare won’t cover anything else. Over the past month, things are getting worse again and I spend most of my time in bed with an upset stomach. I generally eat one meal a day because it’s about all I can tolerate. I am on Rebylsus to control my diabetes as well as my weight. I have lost more than 70 lbs in the past year because of EPI. My doctor did a colonoscopy to rule out Crohns or any other gastrointestinal diseases (my sister has had Crohns for more than 50 years, so we needed to make sure that was not the problem). Anyway, my doctor is not helpful at all. I have seen him on telemed twice, and then again for the colonoscopy. He hasn’t given me much feedback and doesn’t return phone calls in a timely manner. I am in Farmington Hills, Mi. Does anyone know of a good responsive doctor in this area? Your help would be well appreciated

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Replies to "I was diagnosed with EPI in November 2023. I take ZENPEP because Medicare won’t cover anything..."

I was just diagnosed this year. I had pancreatitis 5 years ago and have not had a flare up since then. But since then I have been on a "be kind to pancreas diet". Now I'm not sure how I need to change my diet. I got the Creon pills (very expensive w/ insurance). Can I just take them when I know I will be having a heavier meal which happens on the weekends and not take them during the week?

I may know one. If you can message me I can find his name but I don't know how close he will be as he is in Oakland Cty IIRC; around 14 or 15 mile