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DiscussionAnyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)Comment receiving replies
Replies to "I also had a septal myectomy in 2017. Didn't help. I thought it would. The doctor..."
Deanna, I wish it had worked for you. Am surprised it did not because it's touted as the Gold Standard surgery for HCM and has been done at Mayo since 1959. I think the obstructive type is less common and, as in my case at that point in time, surgery was imperative if I was to live. I was also very surprised that 1 in every 500 people have HCM. Perhaps its wider prevalence is due to awareness in the medical field. What was unique about your heartbeat? Mine was a loud murmur. Has anyone suggested an alcohol ablation for the bottom part of your heart? Just wondering.
How often does a myectomy NOT work. I haven’t heard of that and this is important information for those of us considering this surgery. Thanks for your input.