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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)
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@deanna529

This is a double-blind study. I do not know any results or what drug I am on. At week 24, I should know more. I will keep you posted. At that time I will be doing a "washout" before they reveal what drug I have been on. Then possibly be put on aficamten if, in fact, I am not on it now. It is a crapshoot. Being Mavacamten had negative effects on me, so I thought this was worth a try.

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Replies to "This is a double-blind study. I do not know any results or what drug I am..."
manuelpo | @manuelpo | Mar 23 1:34pm

Thank you @deanna529
Best luck to you on that new medication and I agree with you it is worth to try since the Mavacamten did not work for you. I will wait for the results if you can post them after week 24. Take care.

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andyherman3 | @andyherman3 | Mar 24 8:22am

Please keep us posted as I am very interested in the results and benefits of aficamten

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