@krb48
That's an awful situation to be in but who knows when you may need the assist of the device. I would be hesitant too if I wasn't symptomatic. I have Epilepsy and haven't had a seizure in 5 years but who knows if or when I might without medication. It's that what if factor. I’m curious what others have done who are much more knowledgeable in this condition than I. What does your physician say? I think I'd get a second opinion too.
Best of luck,
Jake