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Pacemaker recipients: Looking for support from others

Heart Rhythm Conditions | Last Active: Nov 4 5:49am | Replies (490)
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@kanaazpereira

Hello @11241935

Thank you for sharing; we're so glad you've joined us on Connect. I'd like to introduce to @tula @steve1948 @rayhastings @oliver22 @loisblo @agullotti @kelloggk @raincrowe @lydoff65 @dfay and @myiokubo, who've written about living with IPF, and many of them have written about Esbriet as well.
I'm tagging our Mentor @llwortman too, as I'm sure she may be able to offer more support and insight.

You can read more in these discussions on Connect:
– Pulmonary Fibrosis https://connect.mayoclinic.org/discussion/pulmonary-fibrosis/
– IPF How To Cope with Sick Feelings https://connect.mayoclinic.org/discussion/ipf-how-to-cope-with-sick-feelings/
– HRCT https://connect.mayoclinic.org/discussion/hrct/

@11241935, have you asked your doctor about pulmonary rehab? Are you on oxygen?

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Replies to "Hello @11241935 Thank you for sharing; we're so glad you've joined us on Connect. I'd like..."
leew1936 | @leew1936 | Sep 18, 2017

I did the rehab.after the original surgery. im waiting for the evaluation results from a heart surgeon. the valve was size 19 mm. was too small. opening now at 1.1. was told that sometimes they can break the ring to install a trans valve.this valve has a flexible metal ring. just wanted to know if anyone has info

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