bhadfield,
I've experienced the same issues. I've posted previously about my experiences. Ankles and feet are also part of my symptoms. I've been on prednisone for over 2.5 years, averaging 25-30mg daily. I work with U Miami Research Hospital, not Mayo, and I am currently on Prednisone, max infusions of Actemra, and we've just added celebrex twice daily for my feet and ankles. I'm also working with the NIH Research team, who affirm UM's mandate for me: dual goals (conflicting) prioritized as 1) increase prednisone dosage during flares (roughly one every 6 to 8 weeks) to knock back inflammation and, 2) reduce prednisone to 10mg daily (so far I haven't been able to get here). During a flare I typically have to increase prednisone dosage to 40mg, then taper slowly (1-2mg per week). Hope this helps.