← Return to Caregiving taking its toll: Stage 4 Glioblastoma & Lymphoma

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@jmp1234

I am a liver transplant patient unos waiting list for donor. Mayo in jacksonville florida. Came to this forum to get a feel for caregiver side of things . Not a day goes by that I am not grateful for the the gift of a loving caregiver in my life. Not a day goes by that I am not filled with guilt about my physical situation and the burden I am. We are both making it through each day keeping our eyes on the prize of a return to a sense of normal, post transplant. My partner has picked up my household daily tasks, but she is pretty toasted from it all. She doesn't allow me to hire outside help for yard, flower,garden, minor repairs. 60% of days are OK from mental aspects. She has a 9-5 job from home office that is demanding at times. Some days I feel I would rather be dead than see her work so hard. I posted here to let the caregivers know we patients feel you. And thank you to all who make this sacrifice.

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Replies to "I am a liver transplant patient unos waiting list for donor. Mayo in jacksonville florida. Came..."

Hi, @jmp1234 As my wife’s long term caregiver during her 14+ year war with brain cancer, I appreciate your post, point of view, and kind words for caregivers.

I wish you well as you journey through your wait. Also, give my regards to your partner on their caregiving decision!

Strength, Courage, & Peace
Scott

Thank you for ur honesty and gratefulness, you have a great caregiver. I lost a husband who took a great deal of care, work, etc; but after he was gone I missed him so much-having him sick was better than not having him at all. We are unique and we are all valuable even in our sickness. Will pray for u.