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Replies to "Canada same way. Unless you yourself experiencing this there is little understanding. I’m sure my next..."
Brain & Nervous System | Last Active: Oct 7 7:03am | Replies (22)
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Canada same way. Unless you yourself experiencing this there is little understanding. I’m sure my next appt with neurologist will be useless. Last time I went I was totally gaslit. Sent me home with clonazapam. I told him “this is NOT anxiety” and he shrugged and said “well we use it for other things” but then withheld any explanation. I went to my car in parking lot and cried. I will get one more muscle nerve conduction test then I guess I will have to sit back and let my health concerns play themselves out. Getting tired of it all as I’m sure my friends and family are (hence why I’m on this site). Not one to give up.
Replies to "Canada same way. Unless you yourself experiencing this there is little understanding. I’m sure my next..."
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Exactly!No one understands unless they are dealing with it themselves.It is very difficult to find a good neurologist.The problem is if these symptoms are all brought on by covid they are not going to figure it out.They definitely like to throw anxiety medication at everyone.They just need to say that they have no idea what is wrong istead of blaming it on anxiety.I think that is very difficult for doctors to do.The vagus nerve is attacked by the covid virus as well and the vagus nerve controls so much in the body.I tried to ask the neurologist about the vagus nerve and considering it is supposed to be their speciality he did not know one thing about it.The only medicine I have taken my whole life is synthroid for Hashimito's disease.It took almost 15 doctors just to figure that out that I had Hashimito's which is crazy.Even a specialist a John's Hopkins could not figure it out.I have one doctor trying to get me into NIH right now.I don't know if anyone will know be able to help there,but maybe.If anything works or if I hear of any new treatments I will let you know.