@stimey60, I'm not treated in Rochester, but I've found that sometimes my oncologist and pulmonologist don't always coordinate all that well. I've started seeing my primary care provider after a few years of not seeing her, and I have been glad that I did. She was able to answer some questions for me, pull together some information from the specialists, and she got me a follow up appointment with one of the specialties when she wasn't able to help.
Just a suggestion, but have you reached out to your primary care provider?