Coughing a lot after lung cancer treatment. Don't know why

Posted by Donna @stimey60, Mar 16 11:26am

I have lung cancer stage 3A . Been through the chemo and had surgery.
It's been about 5 months now. I never coughed before , yes I was a smoker for 52 years.
But I find myself coughing alot, well some days nothing other days all day.
I don't understand why
Has anyone else had this?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

@mikee2all

Tagrisso by AstraZenica.

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What is it a drug? What is it used for?
What type of cancer?

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@stimey60

What is it a drug? What is it used for?
What type of cancer?

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Hi @stimey60, I hadn't had a chance to welcome you to Mayo Connect yet, and I'm glad that many members have commented on your post.
There are some types of lung cancer that are caused by mutating genes which are 'targetable' with medications, referred to as targeted therapies. When biopsies are performed the tissue/fluid is usually sent for biomarker testing. That test can identify if there is a gene mutation driving the cancer.
Tagrisso is a targeted therapy specific to EGFR mutated lung cancer.

I'm glad that you are starting to feel better, and that you found Mayo Connect.

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@lls8000

Hi @stimey60, I hadn't had a chance to welcome you to Mayo Connect yet, and I'm glad that many members have commented on your post.
There are some types of lung cancer that are caused by mutating genes which are 'targetable' with medications, referred to as targeted therapies. When biopsies are performed the tissue/fluid is usually sent for biomarker testing. That test can identify if there is a gene mutation driving the cancer.
Tagrisso is a targeted therapy specific to EGFR mutated lung cancer.

I'm glad that you are starting to feel better, and that you found Mayo Connect.

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Hello I'm glad I found this spot as well. As I stated I'm in Minnesota and go to the Rochester clinic. I have had wonderful service by world class providers, but I don't understand the followup, there is non. They diagnose you they treat you but that's it no followup no nothing. I have been struggling with everything and have found no support. Why

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@stimey60

Hello I'm glad I found this spot as well. As I stated I'm in Minnesota and go to the Rochester clinic. I have had wonderful service by world class providers, but I don't understand the followup, there is non. They diagnose you they treat you but that's it no followup no nothing. I have been struggling with everything and have found no support. Why

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@stimey60, I'm not treated in Rochester, but I've found that sometimes my oncologist and pulmonologist don't always coordinate all that well. I've started seeing my primary care provider after a few years of not seeing her, and I have been glad that I did. She was able to answer some questions for me, pull together some information from the specialists, and she got me a follow up appointment with one of the specialties when she wasn't able to help.
Just a suggestion, but have you reached out to your primary care provider?

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@lls8000

@stimey60, I'm not treated in Rochester, but I've found that sometimes my oncologist and pulmonologist don't always coordinate all that well. I've started seeing my primary care provider after a few years of not seeing her, and I have been glad that I did. She was able to answer some questions for me, pull together some information from the specialists, and she got me a follow up appointment with one of the specialties when she wasn't able to help.
Just a suggestion, but have you reached out to your primary care provider?

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Yes and your right she has been a great help. You say oncologist and pulmonologist, I have not even talked with a pulmonologist! I have begun to lose faith in my clinic and thinking about getting treatment else where

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@stimey60

Yes and your right she has been a great help. You say oncologist and pulmonologist, I have not even talked with a pulmonologist! I have begun to lose faith in my clinic and thinking about getting treatment else where

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Good Morning! Have you reached out to your team through your patient portal? Mayo has a patient portal where you can message any of the team like the Oncologist, your Surgeon, etc. You can message them with what your concerns are and they get back to you usually in a day or two. I used it at least a few times.

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@cmcguire10

Good Morning! Have you reached out to your team through your patient portal? Mayo has a patient portal where you can message any of the team like the Oncologist, your Surgeon, etc. You can message them with what your concerns are and they get back to you usually in a day or two. I used it at least a few times.

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yes I've used that. Let me give you an example. As you know when your first diagnosed it's just a whirlwind of information coming at you, I really don't remember who said what or when. As I said I had my chemo and then the surgery. Now I don't know if I was told or not but I could not lay down I had pressure on my chest I could not take a deep breathe I lose it! Instead of saying it's my lungs adjusting after surgery they thought it was my heart which is understandable I went to the EU acouple of times before one doctor sat me down and explained that my space where my lung was is filling up with fluid he said there was not alot of fluid it's just your body has to get use to the empty spot. That's all I needed it's make sense but I was just in a panic, mayo never warned me of that it scared the crap out of me

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@stimey60

yes I've used that. Let me give you an example. As you know when your first diagnosed it's just a whirlwind of information coming at you, I really don't remember who said what or when. As I said I had my chemo and then the surgery. Now I don't know if I was told or not but I could not lay down I had pressure on my chest I could not take a deep breathe I lose it! Instead of saying it's my lungs adjusting after surgery they thought it was my heart which is understandable I went to the EU acouple of times before one doctor sat me down and explained that my space where my lung was is filling up with fluid he said there was not alot of fluid it's just your body has to get use to the empty spot. That's all I needed it's make sense but I was just in a panic, mayo never warned me of that it scared the crap out of me

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I totally get it. If it weren’t for this community on here I would have not known a lot of things ahead of time. This is where I learned a lot of things. I am just a firm believer in Mayo as they have helped my family when other Doctors in my own community were wrong. They have more advanced technology and are Specialists. Everyone has, and is, entitled to their own opinions, and I respect yours too. Hope you continue to heal.

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@cmcguire10

I totally get it. If it weren’t for this community on here I would have not known a lot of things ahead of time. This is where I learned a lot of things. I am just a firm believer in Mayo as they have helped my family when other Doctors in my own community were wrong. They have more advanced technology and are Specialists. Everyone has, and is, entitled to their own opinions, and I respect yours too. Hope you continue to heal.

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oh I agree with you mayo is top notch I believe. They saved my life.
I just think they could do a better job with followup information. Cancer is one of those words that put fear in people's hearts and their minds. People need their hands hald they need hugs they need to be told they are ok. They need love

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