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What would you do? Medication.
Hi, I am interested in lay people opinions given I have received so much conflicting advice from MDs. It’s astounding and I’m sure I am not the only person who is confused and wary about any decision I make.
I am 68 years old and have significant OP – my T score is a -3.5. I was diagnosed in October. I knew I was genetically predisposed so have regularly exercised since my 20s and have maintained a healthy diet. Since the diagnosis, I have upped the frequency of weight lifting and the use of resistance bands and I am doing what has been advised in terms of diet and supplements.
My Plan D insurance will only cover Prolia and Forteo. I have decided against Prolia and am reluctant to start Forteo. Backing up a little, I enjoy adventurous vacations such bicycle trips and strenuous, long hikes. In September, for example, I hiked a portion of the Camino de Santiago. While training, I slipped and fell three times on big rocks and didn’t break anything. Last year, I took a bicycle trip in Europe. I tried out an electric bike which got away from me and I took a hard fall – it hurt, but no fractures. I know that my bone density is low as reflected by my low T score, but I also believe the quality of my bones is good, and the DEXA score is only part of the equation. One of my doctors said, “Oh, you did your own DEXA test.”
Like everyone, I want to avoid a fracture more than anything so I am willing to consider Forteo, but here is my concern: Is there a chance I might hurt the integrity of my bones by going on it? Might I inadvertently worsen my own situation by taking medication just to improve my DEXA score?
I also want a life plan that needs to last maybe 30 more years. We take a medication for a year or two, then switch to another medication for a year or two. Then what?? None of the MDs I have talked to have had a satisfactory answer. Maybe they are waiting for new drugs to hit the market.
I’m really struggling with the decision. I know I am the only person who can make it, and I will have to be responsible for the outcome, but I would really like to hear what thoughts others have. Thanks so much - any input is welcome.
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lynn59, ok then.
Sounds like you made a positive change when it comes to the MD. You are not alone when you talk about disaffected "care givers."
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1 ReactionThat is the plan for me also per my endocrinologist . She told me that after my last dose of Evenity I will take a one month break and then start the reclast .
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1 ReactionMy doc said there is no rush to get on Reclast after Evenity!
I watched a good YouTube presentation by Keith McCormick. He doesn't recommend HRT after 10 years from menopause b/c the brain and body forget about estrogen so it's not like a natural presentation anymore. He said others have prescribed later, but he said it makes him uncomfortable.
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2 ReactionsHow long did your doc say that you can wait to go on reclast ?
Correction - McCormick doesn't recommend HRT 7 years beyond menopause.
He was a little vague but agreed to 2-3 months. My CTX is low...it might depend on that partially. But the new info for me was that it takes awhile for the mineralization in bones that Evenity causes, to happen, and you want that to happen before Reclast is started. Maybe your doc can also explain more specifically for your own situation.
Thanks that is very helpful info .
I’m scared to pick and start too! Did you decide on a treatment plan?