← Return to Pacemaker recipients: Looking for support from others

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@colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

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Replies to "That's a great place to start @balubeje. To tag a particular member, simple add their @username..."

All i know is levels. Having to do with meds. I will ask and post the correct answer.

My cardiolygist told me if i were to get the defibrilator jolt over a weekend. Not to waist time in the emergency room. It did its job. Just come in on Monday so he can check it out. Kevin Young in Lake Charles La. is my Dr. I think he is really good. He also spends a lot of time with me. Answerd my questions and then informs me about things i didnt ask. It makrs sense after giving it sone thought. I believe until God is ready for me. Ill be living and active. I still have so many questions that i enjoy reading all your post. @ronbee @

I'm one of those who doesn't have high blood pressure I'm probably one who gives it-lol. So I can't speak to bp medications. I did get dizzy once in a while felt like my blood wasn't flowing all the way up to the top of my head was the analogy I shared with my PCP that got all this rolling in the first place. As for the big bump-I thank God often that was an option and I'm totally okay that I don't have a
defib but should that come to be I will says thanks to the Almighty that is also an option.

I too give thanks and Praise to our Almight Father. I do not worry because he is with me always. Thank You for giving God Praise. I am curious and enjoy reading others stories. Hearing what they feel and expierience. Its nice to have this site learn get others perspective.@balubeje Thank You all for welcoming me and for all the replies.

Cardiac emzymes. Once you have a heart problem and start meds. Blood clots or kidney problems are possible. Blood work shows cardiac emzyme. Which tell if you heart is struggling or not. So it can indicate a change is needed before complications. I was told they dont push it due to keeping cost down.

Colleen--you know me from another board. But I stumbled on to this one and want to weigh in. My daughter was born with major heart defects--single ventricle, transposition of the great vessels, a 12 percent coarctation of the aorta, and an atrial septal defect. She wasn't supposed to live too long, as kids with such complicated hearts usually lived only a few years and never to adulthood. But then a life-saving surgery and a new perfusion machine, which allowed surgeons to operate on as patient much longer, were developed. She had that surgery at Mayo's when she was 11. (The surgery was only done at four med centers in the U.S. at that time.) Three weeks after surgery, however, my daughter, like two-thirds of the kids, developed a post-op rhythm problem, superventricular tachycardia, (SVT) because the surgeons had to cut through the atrial sinus node and the scarring affected the heart rhythm. When she was 14, her rhythm problems exacerbated. Since her one and only ventricle was bradycardic, she had a pacemaker implant to keep her ventricle at a normal rhythm and medications to control the SVT. Seven years later, when the meds were no longer effective, she had two ablations--the first slowed and changed the SVT and the second eliminated it. She still has a pacemaker for the ventricle, and she's had several replacements. She just turned 47 last month, and has had pacemaker for 33 years. She is doing well and lives a normal, active life. She met her husband in their university marching band (Yes, she marched and played a trumpet at the same time.) Now he has his doctorate in music and is the marching band and pep band director at another major university. She designs marching band formations for him and other band directors. Just wanted to encourage the new pacemaker recipients on this board. You can live a normal life with a pacemaker. She got her first one in 1989.