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Is Camzyos effective long term?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Oct 22 5:45pm | Replies (41)Comment receiving replies
Hi all, I've been on Camzyos since March 2023, so a few days short of a full year. I wouldn't let one bad day worry you. Like everyone else I started at 5mg and did great. The protocol required a drop to 2.5mg and I gradually went downhill over a few weeks. Back on 5mg and I've been doing great ever since. That's not to say everyday is perfect, every once in a while (6-8 weeks?) I have an "off" day where it seems the symptoms are back, but I know to just take it easy and not push myself on those days until I'm back to feeling great (which is most of the time).
Replies to "Hi all, I've been on Camzyos since March 2023, so a few days short of a..."
Good morning, Hans! My doctor and I have been talking about putting me back up to 5 mg too. One of my levels has elevated a bit-how hard my heart is working, in the middle-can't remember right now what that's called-so when I go back in August, he will see if he is going to raise Camzyos mg. again, or keep at 2.5. I feel fine, but remember how great I felt on 5 mg. so we shall see... So happy you are still doing well too! 🙂
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Such good news to hear of your experience.
My cardiologist has kept me on 5 mg now and will keep me on that dosage until my next echo end of May.
Just last week though I felt quite poorly and after an ECG showed I was in atrial fibrillation, my cardiologist performed a cardioversion procedure.
Back now on Sinus Rhythm.
Heart Rate not great after the procedure; verging around 50 so lack energy,
but not in atrial fibrillation any longer which is a relief.