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Is Camzyos effective long term?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 2 days ago | Replies (48)

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@hansj

Hi all, I've been on Camzyos since March 2023, so a few days short of a full year. I wouldn't let one bad day worry you. Like everyone else I started at 5mg and did great. The protocol required a drop to 2.5mg and I gradually went downhill over a few weeks. Back on 5mg and I've been doing great ever since. That's not to say everyday is perfect, every once in a while (6-8 weeks?) I have an "off" day where it seems the symptoms are back, but I know to just take it easy and not push myself on those days until I'm back to feeling great (which is most of the time).

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Replies to "Hi all, I've been on Camzyos since March 2023, so a few days short of a..."

Such good news to hear of your experience.
My cardiologist has kept me on 5 mg now and will keep me on that dosage until my next echo end of May.

Just last week though I felt quite poorly and after an ECG showed I was in atrial fibrillation, my cardiologist performed a cardioversion procedure.
Back now on Sinus Rhythm.
Heart Rate not great after the procedure; verging around 50 so lack energy,
but not in atrial fibrillation any longer which is a relief.

Good morning, Hans! My doctor and I have been talking about putting me back up to 5 mg too. One of my levels has elevated a bit-how hard my heart is working, in the middle-can't remember right now what that's called-so when I go back in August, he will see if he is going to raise Camzyos mg. again, or keep at 2.5. I feel fine, but remember how great I felt on 5 mg. so we shall see... So happy you are still doing well too! 🙂

may i ask, are you still feelin great and on 5 mg? i am on month 7 of 5 mg, grad went from 124 to 18. very thankful!!